Update: Online communities project

Many of you will recall that we’ve started a project to look at requirements for the next version of our forum. This is part of a wider piece of work to identify in depth what people affected by Parkinson's want from our online services. And the findings from our research will determine what our website and online communities will look like in the future.

Some of you have already let us know about some things you'd like to see improved on the forum - and as part of our research we will look more extensively into requirements for online communities as well as the best way to provide information and support across the website.

We’ve created this thread to keep you updated on this exciting project and also so we can let you know when there are opportunities to get involved.

Over the coming months you may see updates from me, other moderators and members of the web team. Please be sure to check back regularly.


We've moved a couple of posts to a new thread entitled, "Help needed" which you can find here:


Please try to post basic questions about the forum there.

We'd like to keep this thread focused on the online communities project so that progress and opportunities are clear.


One of the activities we'd like your help on as part of the project Ezinda described above, is an exercise to test what is and isn't working well on our current website.

The online activity consists of a set of tasks to test the website (not you!)and all responses are equally helpful to us.

You can read more about it and take part right now here: http://www.parkinsons.org.uk/default.aspx?page=12135

And finally look out next week as we'll be launching a survey to find out what information and services you want us to provide online in the future.

Thanks for your help. If you have any questions you can email me on [email protected]

Liz Winthrop, Head of Digital
Are you:

A person who is newly diagnosed (less than 2 years) and is still working


A carer of someone who has had Parkinson's for 10 or more years?

We're looking for two people to be interviewed in the London office for the next phase of our web user research which we've described above. It would be great to have forum representation on all parts of this exercise.

If you fit these categories, we'd love to hear from you. You'd need to be available to come into the office on Thursday 20 October. Travel will be reimbursed.

If you're interested or have questions, please contact Alana Mew at [email protected] or 020 7963 9328.
Parkinson's UK web survey: tell us what you think

Thanks to all of you who completed the website testing exercise last week. We had a great response and this will provide us with some very useful data for improving the website.

Now we'd love to hear what you think of our online services and what you'd like to see in the future.

You can take the survey here: http://svy.mk/romPnA

The closing date for responses is 10am on Monday 24 October.

If you have friends or family who you think may be interested in taking part please feel free to share the survey link with them.

Thanks for your help.
Do you live in the South West region or Wales?

For the next stage of the online review project, we’re looking for volunteers that can travel to Bristol to take part in a group exercise. This activity will help us identify how we organise information on our website in the future.

The exercise will take place in Bristol on Tuesday 8 November from 11am to 12.30pm.

We’ll reimburse any reasonable expenses.

If you or your family member are recently diagnosed (6 months or less) and live in the area, please contact Alana Mew at [email protected] or 020 7963 9328