Does anyone have a diagnosis of vascular parkinsonism or know any specialists who might help treat this?
Have a look at red light therapy photo biomodulation may be of interest to you. Wellred do a device a coronet which may help check with company, which is non profit. The coronet retails about £550 the last time I checked.
There are good videos on youtube about the subject with one on the coronet.
Below are some links to previous threads on this topic and some recent papers for more detail:
Vascular Parkinsons Pamela1956 Nov '20
I am a Carer for someone with vascular parkinsons. Very frustrating as no one is letting me know what to expect. Been told vascular parkinsons is different to parkinsons but nothing else. I would like to know more about it .
JohnnyD Feb '17 The consultant didn
t think Sinemet would help Vascular Parkinsons. So im pleased to prove him wrong, if that`s what it turns out to be.
I Feel The NHS Has Given Up On My DadSuzanna1969 Apr '15
My lovely Dad was diagnosed about 2 years ago with Vascular Parkinsonism. He is nearly 88.
He was put on Levodopa but warned it probably wouldn’t help and to stop taking it after a month if there was no change.
He did persist just in case but after 3 months there was no positive change, quite the opposite, so he stopped. He has not been offered any other medication at all.
Brenter Sep '15
My wife has vascular Parkinsonism. Some of the same symptoms as Classical Parkinson’s, but mainly mobility problems through leg freezing, balance problems and inability to negotiate. Frustratingly, there do not seem to be any helpful treatments. Other sufferers of this condition are expressing the same frustrations…. Vascular Parkinson’s is a neglected area. I hoped the article and posts would encourage some others to enter the forum and talk about their experiences.
An Updated Diagnostic Approach to Subtype Definition of Vascular Parkinsonism – Recommendations from an expert working group I.Rektor, N.I. Bohnen, A.D. Korczyn, V.Gryb, H.Kumar, M.G. Kramberger, Frank-Erik de Leeuw, Z. Pirtošek, I.Rektorová, I.Schlesinger, J.Slawek, P.Valkovič, and B.Veselý, Parkinsonism Relat Disord. 2018 Apr; 49: 9–16.
The typical clinical picture the insidious onset of VaP includes a progressive disorder with a variable combination of symptoms including predominance of lower body symptoms with gait disorder, corticospinal findings, cerebellar signs, rigidity, cognitive impairment and urinary incontinence.
Vascular Parkinsonism: Still Looking for a Diagnosis G.Mostile, A.Nicoletti and M.Zappia Front. Neurol., 15 June 2018
Available proposed diagnostic criteria for VP are based on pathological data by Zijlmans et al. In particular, the diagnosis of “vascular parkinsonism of insidious onset” is supported by the presence of:
(b) relevant cerebrovascular disease by brain imaging;
(c) insidious onset with extensive subcortical white matter lesions, bilateral symptoms at onset, and the presence of early shuffling gait or early cognitive dysfunction.
Vascular Parkinsonism: A Review on Management updates Thilini B. Udagedara, Alahakoon Mudiyanselage Dhananjalee Alahakoon, and Inuka Kishara Goonaratna Ann Indian Acad Neurol. 2019 Jan-Mar; 22(1): 17–20
It accounts for 4.4%–12% of all cases of parkinsonism. …VP is classically described as an entity characterized by predominant lower-body parkinsonism, postural instability, shuffling or freezing gait, absence of rest tremor, absent or poor response to dopamine, and presence of corticospinal tract signs … imprecise clinical and neuroimaging criteria have contributed to less defined diagnostic boundaries, resulting in misrepresentation of other entities as VP
Vascular (Multi-Infarct) Parkinsonism 2021 Joseph Jankovic, M.D.
Vascular (also referred to as “multi-infarct”) parkinsonism is a form of “atypical parkinsonism” in which parkinsonian symptoms (slow movements, tremor, difficulty with walking and balance, stiffness and rigidity) are produced by one or more small strokes, rather than by gradual loss of nerve cells as seen in the more typical neurodegenerative Parkinson’s disease.
Thanks for this post!
when looking for posts on this topic I noticed a link to the pduk information page was no longer working
Have a look at red light therapy, bio photo modulation, and Oxygen therapy may help. They use O2 therapy for a lot of brain conditiions including parkinsons and ms.
I believe red light therapy can improve brain function by recharging the cells abd may improve vascular network!
A bit out of the mainstream, a lot of research interest!!as
Have a look on youtube for mire imfo!!!