Hi. My mum - 80 next week - has recently been diagnosed with VP… are there any things that we need to know to help her - she has been prescribed medication that she will start to take next week - not sure what it is called yet… We are struggling as she lives with my dad who has dementia. I have 2 sisters but we need to come up with a better plan for them both as she cannot cope with Dad anymore even with us all helping.
Hi KC48,
We saw this was your first post and wanted to welcome you to our community forum. We are sorry to hear your mum is struggling, but we can assure you that you are not alone in this, as you are sure to learn as our group members introduce themselves. Added to their support we have a couple of tools that can at least help educate you and the family on what she’s experiencing, in the form of our constantly updated website, at Parkinsons.org.uk. You might start with this page with some general info about the types of Parkinson’s: Types of Parkinson's | Parkinson's UK. We’d encourage you to apply any questions you may have to the search function, but if you’d prefer to speak to someone directly, please don’t hesitate to reach out to our helpline, on 0808 800 0303. It’s free and confidential and our advisor team offers a wealth of resources of their own, including connecting you with care in your mum’s area. This team is regularly lauded for their kindness and for the many, sometimes surprising, ways they can help, and that help is for families and carers as well as people with Parkinson’s.
We hope these options can offer some comfort, and please accept our warmest welcome.
Jason
Forum Moderator
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Hi KC48,
jason.mod has given you great advice, please follow it.
You have to get your dad into an assisted living, ‘unit’ now. I am not sure what it is called in the UK.
No matter how much he screams and shouts and performs it must be done not only for your mother as there is no way you can allow her to try to deal with him now, but for her and the mental health of yourselves as well.
Honestly there is no other choice.
Yea, I know it sounds harsh, but it must be done.
I consult for a number of organizations in South Africa like (Life Line and Suicides Anonymous) and PD patients here, and I have “gone through” and had to deal with some similar aspects here.
I do realize what I am saying but if you don’t it will end up a disaster.
Sorry if I sound like a horrible person, but please do it.
Hello, My mum has also been diagnosed with this condition. It hard to find other people who’s relatives are going through the same thing. My mum is in a wheelchair and has significant mental impairment, she is being looked after in a care home. I don’t feel we are being supported as no medication worked and she is just left to decline. I just want to know about what happens now.
Hi Emma,
Welcome to our community forum. We’re sorry to hear your mum isn’t receiving the support she should be. You’ll find many people in similar situations here with advice to share, so do have a look around the forum when you can. We’d also refer you to this page of the website: Support for you | Parkinson's UK. And please don’t hesitate to reach out to our free and confidential helpline on 0808 800 0303 if you’d like to chat with a friendly advisor.
Wishing our best to your family,
Jason
Forum Moderator
Hi Emma,
I’m so sorry to hear what you are going through.
I am not sure as to what you mean when you say “significant mental impairment”
That could mean a lot of things.
Can you be more specific please and perhaps we may be able to help.
All I can say at the moment is that if it is dementia, I really do not believe for an instant what Lar says is correct,
My mother in-law had dementia so I know what you must be going through.
Sorry Lar, I really do not mean to be dismissive of your suggestion, however, no matter what you see on youtube, that will really not work.