I am a Carer for someone with vascular parkinsons. Very frustrating as no one is letting me know what to expect. Been told vascular parkinsons is different to parkinsons but nothing else. I would like to know more about it . He was diagnosed in March 2020 and is now completely bed bound.
Hi @Pamela1956 and welcome to the forums. I’m sorry to hear that your husband’s Parkinson’s is causing him to be bedbound, I’m sure there will be other forum members who will be able to share their own experiences of vascular Parkinson’s.
You can also contact our > Helpline and Local Adviser Service on 0808 800 0303 or email: [email protected] where we have specialist nurse advisers who will be able to discuss your concerns, and our helpline and local advisers can also link you in to support in your area.
Forum Moderation Team
…Lost something there - sorry! What I was trying to say was that support for the carer is just not possible. A phone call doesn’t cut it for me. If I don’t get a decent night’s sleep soon, I will be the one in care and then what?