I am a Carer for someone with vascular parkinsons. Very frustrating as no one is letting me know what to expect. Been told vascular parkinsons is different to parkinsons but nothing else. I would like to know more about it . He was diagnosed in March 2020 and is now completely bed bound.
Hi @Pamela1956 and welcome to the forums. I’m sorry to hear that your husband’s Parkinson’s is causing him to be bedbound, I’m sure there will be other forum members who will be able to share their own experiences of vascular Parkinson’s.
You can also contact our > Helpline and Local Adviser Service on 0808 800 0303 or email: [email protected] where we have specialist nurse advisers who will be able to discuss your concerns, and our helpline and local advisers can also link you in to support in your area.
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…Lost something there - sorry! What I was trying to say was that support for the carer is just not possible. A phone call doesn’t cut it for me. If I don’t get a decent night’s sleep soon, I will be the one in care and then what?
Welcome to the Parkinson’s UK forum.
I’m really sorry to hear that you feel support is not there for you as a carer, we have many people on the forum that will understand some of the challenges you face as a carer and we’re here to help you in any way we can so please don’t feel like you’re alone.
To answer your question about support for carers, Crossroads Carer Services Tyne & Wear are a local charity working to improve the lives of carers, enabling them to have a life of their own and sustain their own wellbeing. They provide support, including short breaks, for both adults and children. I would advise you to get in touch with them on 01207 549 780 or email them at [email protected].
We also have a lot of useful information on the Parkinson’s UK website which you may find helpful as well which you can find here: https://www.parkinsons.org.uk/information-and-support/caring-someone-parkinsons
You are also welcomed to give our helpline service a call for more support.
Forum Community Manager