Very Dry Mouth

My Mum was diagnosed with Parkinsons in June this year and is on Madopar. The medication is working, as she is shaking less and walking better. Soon after starting the medication she started suffering with very dry mouth. The dry mouth is effecting her everyday life, as some days it is so bad. It has got to the stage of eating very little and what she does eat needs to have no lumps, so have been preparing some pureed veg for her that can be frozen. She has tried everything that we can find including sipping water, chewing gum, hard sweets, Boots mouth spray, xylimelts and Biotene products.

Does anyone have any other advice or medication for dry mouth worth trying? Meals have become very difficult for her, so I am also looking at meals that I can precook and freeze. Any advice is welcome. Thanks

Hi there Littlefoot. We’re sorry to hear about your Mother’s problems with dry mouth. We’re sure that other forum members will chip in with any experiences they have, but in the meantime I just wanted to signpost the forum archives, where there are a few historical threads for you to read through on this topic. Click here for the relevant threads.

In terms of medication - please feel free to utilise our helpline for guidance in that regard, via 0808 800 0303.

Best Wishes
Tom A, Parkinson’s UK Moderator.

Thank you for your reply.

I have read a lot of the previous threads and tried most of the advice given. My parents have also telephoned the helpline and been given some advice and a different medication to try. The medication was to help reduce mucus, but this is not the problem and has not worked.The situation is now that my Mum is eating very little due to dry mouth and lack of taste.

Her Parkinson nurse is also on holiday until 5th December.

You can get a gel spray for dry mouths called bio xtra

Hi Littlefoot. My wife recently had a dry mouth. At the time, she couldn’t eat anything faintly spicy without getting a burning sensation. We were at the GPs for something else and when I mentioned it, the GP said to get a blood test. She was found to be low on B12 and Folates. She took pills for the folates and her mouth was restored to normal really quickly. She had to have 6 injections over a fortnight and will have ongoing quarterly injections for the B12.
At the time, I googled and saw a number of studies w.r.t to B12 and Folic acid and Parkinsons. I also looked on this site. It had been quite a while since anyone had mentioned it on here, so I presumed there was no P link.
But it might be worthwhile taking to your mom’s GP about a blood test.
Hope it works out.

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hi thank you for this, I have only just seen it. My Mum had a blood test a few months ago and Folic Acid came up, she was given tablets, but for some reason did not take them. We are now going to look at it again. Due to other medication she can’t eat dark green veg, so may be part of the problem.

I do wonder if there is a P link. My wife hardly eats any meat since it affects her meds. She does eat plenty of veg and fruit.
Good luck anyway.

Ask her GP for Salivix pastilles. They were a life saver for me as my mouth was so dry my teeth were sticking to the inside of my mouth and I couldn’t speak They are a small red gum, pleasantly flavoured. My GP gives me two boxes a month and I’ve recommended them to many of my PD friends.

Our district nurses recommended we give my Dad ice lollies or rub an ice cube on his lips.
His loves this and it does help.
I gave him the biotene spray but he is not too keen on the taste.
He normally has a lot of unchewed food in his mouth. Does your mum have this problem?

Are these pastilles sugar free?

Yes they are sugar free, I use them. Also I use glandosane synthetic saliva spray. Helpful if you wake in the night.