well looks like nobody is interested in the find by Dr.Lew Lin, at least he tryinghis expertise in many fields on a cure…rather than waste dollar after £££ on a old type of drug thats bean tried and tested like michael j. fox 490 billion dollars, what a damn waste, thought i would have had more response to this by parkinsonians, researchers, specialists etc etc guess thats why we will probably never ever find a cure, sadly !!
I agree with @Jules47, I’m happy to spend time in the sun! I feel that this contraption costs a very large amount of money for something that has no provable research to show it works. The seller says it was tested on five people and is still experimental. In addition they state it may not not cause harm. It would maybe get more interest if they were wanting volunteers to test it so they could do full research rather than part with so much money.
Hi @welshbearuk,
First of all, my sincere apologies for my delayed response to your comment. Unfortunately, this thread slipped off my radar in the midst of me responding to other threads on the forum. Do forgive me - this wasn’t intentional at all.
In response to the information that you shared, a number of studies have demonstrated that near infrared light therapy improves movement and may protect brain cells in various rodent models, and a primate model, of Parkinson’s.
However, there is currently not enough research in people and people with Parkinson’s, for us to know if it could be an effective treatment. If you have any further questions, please feel free to contact our helpline on 0808 800 0303.
Best wishes,
Reah
Thanks so much for your reply to my parkinsons info on Vielight Neuro, means alot to me that someone is taking interest in my internet prowling lol due to my parkinsons and lack of sleep loli seem to find all sorts parkinsons info and its not just ole crap either so i like to mport what i can to help ALL of us in hopfully one day e all would have kicked this Nightmare of ours Parkinsons. im so glad you replied Reah, you have truly made my day , to know at least someone is on the same map as me. the main part of this Vielight Neuro for me, im not sure if you or anyone else have listened to the link i posted with an audio blog of which the main scientist Dr. Lew Lim spoke on this 30 minute audio blog and the only person ive heard speaking with such knowledge was the late stephen hawkins Dr Lew Lim has similar degrees and diplomas, he has basically done it all and is way up top of the league, which is what we need to hep us in our quest.Dr. Lew Lim is an engineer and a Doctor of Natural Medicine with additional diplomas in Medical Neuroscience and Business and Accountancy. He obtained his degrees and diplomas from the University of California at Berkeley, University of Sheffield, Duke University, Quantum University and The Chartered Institute of Management Accountants, he talked about the Vieligh in some length in this audio blog , i found it amazing to listen too, and i believe hes not just in it for the £ & $ so if u havent i would like you and others to take a peek hes an amazing man,a man im sure we need…anyways ive talked enough please forgive me Reah lol…Thanks again you have made my day, thought i was talking to myself, hehe Again !! winks
WelshBearuk aka Hugh James a 25 year old parkinsonian
Hi @welshbearuk,
You’re more than welcome. I’m so glad that you appreciated my response, I really didn’t want you to think that you were being ignored so your response has also made my day - snap! 
You’ve shared some really fascinating information which I’m sure our members will find interesting. I look forward to see you around on some more threads on the forum.
Best wishes,
Reah
Apologies. For various reasons, I’ve been away from the forum.
This system is complete and utter nonsense. The near infrared sauna is nothing more than an electric heater. The headset is a complete con. Photons of any description cannot possibly pass through the skull. They simply don’t have the energy. That’s basic physics. You can’t shine a torch through cardboard, so how can lower energy low infrared pass through bone?
Sometimes I despair at the gullibility of folk. It’s understandable in a condition like PD that people will look for anything that will relieve symptoms or provide a cure, but these people should be strung up for leading people on to strip them of their hard earned money. It’s theft, pure and simple.
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I agree with you.
Babs
Hi welshbearuk
It seems you are convinced that this is a reliable and effective device and worth the money.
I assume you are going ahead with buying and using it.
Please let us know how you get on…I will be a nterested in the results.
GG
hi goldengirl, im afraid if i had the money and funds , i would be the first to try out the Vielight Neuro Head set , but im not, worse luck so maybe the u.s michael j fox company would buy a couple on trial, im sure michael j fox would be first in the que , after all the MJF Organisation blast away over 50 million a year on the testing old useless drugs which have proved over the years to be a dead end street, yet they persist to follow that route
Best regards welshbearuk aka HughYankee here. I’ve just been made aware of this therapy and we may very well throw the money at it to see if it helps. The nasal clip seems more likely to be absorbed than the cranial helmet - but there have been encouraging results in mice and primates and I can’t just chalk it up to a scam. Harvard and MIT have both taken it seriously enough to begin studies.
I will keep you posted, it will probably be a while … if there arent any results, at least everyone will know that. I’m afraid that, if it helps us, many won’t believe it anyway, but I’ll still report it for those who are interested.
This article seems to refute the assertion that skull penetration is completely impossble. I’m not saying we should blindly believe it, I’m just saying we shouldn’t didmiss it out of hand.
I tried using this device but the immediate reaction was to make my tremor worse so I gave up after 3 days. It cost about £1200 but I got 80% of that returned with no issues as part of the satisfaction guarantee. I decided not to continue due to lack of trial data and concern at making things worse. It may be that although I followed the instructions I would have benefited from a more gentle initial use. It certainly had some effect - just not what I was looking for.
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We settled on the neuro gamma and the X-plus. It arrived yesterday and we did the gamma for the first time today - the X/plus is still charging.
The instructions recommend 20 minutes every other day.
I’m sorry to hear about your negative experience - I’ve heard some people didn’t see any improvement, but yours is the first I’ve heard that it made symptoms worse! Glad they honored their return policy for you!!
I’ll post updates when I have any. It’ll probably be at least 6 weeks before we notica any change - if there is any.
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Also in Wales Welshbear and very interested. Also investigating Hyperbaric Oxygen. My Husband is President of the Emlyn and Teifiside Support Group, are you local to us?
hello there im a Aberavon Beach born n bred here a proper shaky parkinsonian sand rabbit lol *winks"…hope you are as well as can be and keepin safe
Hugh aka Welshbearuk
Hi.
Just a comment about Hypobaric Oxygen. I too looked into this and started to use it for 4 sessions with no noticeable effect. (full course was about 20 sessions. I stopped after deciding the evidence was too thin and it might actually be doing more damage. I know there are some supporters of this (a professor ??? at some private Scottish clinic for one). Initially I thought more oxygen must be good but then thought about the process of how oxygen promotes rust and it is reactive oxygen species that can promote cell destruction in the brain. So possibly more oxygen could make things worse. I do not claim to be any kind of expert and have no medical background but thought it may be of interest why I ended up not continuing. My local group use an MS facility that has an oxygen chamber and I think I was the first PWP there to use it - no one else seems inspired to give it a try.
I have been using the Vielight Gamma & XS for about 4 months now. It looks a bit strange & I have not noticed any change but my wife says I look less grumpy (the Parkinson’s mask has maybe slipped a little?). So no harm seems to have come to me & possibly a little improved so I will carry on.
Gary
Hi welshbearuk ,
I’m interested in the Vielight Neuro and photobiomodulation of not just the brain but the whole body too.
I’ve done similar internet research into benefits in depression, anxiety, dementia, Alzheimer’s and Parkinson’s too and most people knock these ideas as scams or that they don’t work.
There are over 400 clinical trials and papers that are written every month on the subject by leading people in the industry so there must be hope that it will at least ease some suffering. No-one is talking about a cure even in the Opioid world. A lot of the benefits of photobiomodulation seem to be when the frequencies, dose and time is set correctly.
In a sufferer in a home environment, they are looking for immediate effects as you would expect and most systems seem to be effective over over weeks and months.
With regards the cost of these systems, the body bed is more than £120,000, and beyond most people.
I have looked at the possibility of setting up a charity so that these could be provided at no cost to the sufferer. Obviously, I’m looking at a monitored service to help set up the system and ensure that the correct procedure is followed.
Any help or advice would be appreciated if you have any relevent input on the subject.
I followed the thinking in the ‘red lights blog’ tried to build my own device for £30 but could not get all the materials. I wanted. to address Mitochondrial failure. Settled for buying the Coronet with some added features for $650. Used it for 3 months, no clear benefit but I am simultaneously addressing Protein Misfolding, Free Radical Damage, and Inflammation. I am definitely healthier but this may be due to exercise. Simon is going to do a future blog on this treatment (currently on an Australia wide trial) on’ Science of Parkinsons.com’.