Hello ,
has anyone heard about the new treatment , by head set , by sending NIR - NEAR INFRA RED Beams OF Light Into parts of The Brain, more importantly have the specialists got ideas about this…i was listening into the video / audio blog a week ago and was very impressed at he findings of Dr lew lim, anyone seen this ??
has this given us hope ??
Hugh aka Welshbearuk
I’d be interested to know how they get light to pass through the skull. I’d better wear a hat going down to the shop today in case my brain gets sunburnt.
Hi @welshbearuk,
I have passed your query onto our research department for them shed more light on this. I will get back to you on this as soon as I can following their response.
Best wishes,
Reah
Hi Reah & Mike, i have 2 links to see and hear all about Vielight neuro, im not sure if the site will let me post them, ive had trouble but well ill try anyways, if not u can get them by e-mail, i read and listened toa a few differant talkins about this headset and its cost of which is about £1400 pounds $1800 us, but if it works and does what it says on the tin i will be a very happy man…please please check out the links and read thoroughly because i was really impressed by both the head set and the DR LEW LIM im sure you will think that finaly theres a light a the end of the tunnel plus even better no surgery, no drilling like ive had in the past like 2inch holes drilled in my brain…
heres the links
this last link below to hear the interview on Parkinsons Recovery Radio with Dr. Lew Lim, inventor of this new photobiomodulation therapy…please listen !!!
Hugh aka Welshbearuk
a parkinsonian of some 25 years or moreplease let me know what you think
Morning all
Logged on to chat on first initial neg feeling when wake after horrible vivid dreams, which I could almost write a story on. Came here to see if anyone else experiences, then get side tracked to other discussions, which help bring me to real life. Thus ended or started here. After seeing the start of these two videois I must admit this is too much for me! Is this Parkinsons? Or just a bit of brain dohh approach to more info that places me in a dohh situation. Dohh being more of hope with a little more insight into stuff of possible no hope! Not neg, just sometimes clear, simple language for our brains to digest, any time of day. Am I correct in thinking first video is saying, nice walk in the sunshine a.m or early p.m is good for us! Second video feels like I have this gadget on in my head in the night by way of odd dreams etc. Apologies techno jargon plus view turned my interest button off at sight etc. Easily done for me, not sure if same for others with PK? The interest button switches off a bit quick, however, thank you for info, all helps to see good efforts to help this horrid, isolating condition. Tapping into a lost part of our head can only be good for us. Agree with walk and sunlight! Big thumbs up even if 5 mins effort, 100% benefit👍
well looks like nobody is interested in the find by Dr.Lew Lin, at least he tryinghis expertise in many fields on a cure…rather than waste dollar after £££ on a old type of drug thats bean tried and tested like michael j. fox 490 billion dollars, what a damn waste, thought i would have had more response to this by parkinsonians, researchers, specialists etc etc guess thats why we will probably never ever find a cure, sadly !!
I agree with @Jules47, I’m happy to spend time in the sun! I feel that this contraption costs a very large amount of money for something that has no provable research to show it works. The seller says it was tested on five people and is still experimental. In addition they state it may not not cause harm. It would maybe get more interest if they were wanting volunteers to test it so they could do full research rather than part with so much money.
Hi @welshbearuk,
First of all, my sincere apologies for my delayed response to your comment. Unfortunately, this thread slipped off my radar in the midst of me responding to other threads on the forum. Do forgive me - this wasn’t intentional at all.
In response to the information that you shared, a number of studies have demonstrated that near infrared light therapy improves movement and may protect brain cells in various rodent models, and a primate model, of Parkinson’s.
However, there is currently not enough research in people and people with Parkinson’s, for us to know if it could be an effective treatment. If you have any further questions, please feel free to contact our helpline on 0808 800 0303.
Best wishes,
Reah
Thanks so much for your reply to my parkinsons info on Vielight Neuro, means alot to me that someone is taking interest in my internet prowling lol due to my parkinsons and lack of sleep loli seem to find all sorts parkinsons info and its not just ole crap either so i like to mport what i can to help ALL of us in hopfully one day e all would have kicked this Nightmare of ours Parkinsons. im so glad you replied Reah, you have truly made my day , to know at least someone is on the same map as me. the main part of this Vielight Neuro for me, im not sure if you or anyone else have listened to the link i posted with an audio blog of which the main scientist Dr. Lew Lim spoke on this 30 minute audio blog and the only person ive heard speaking with such knowledge was the late stephen hawkins Dr Lew Lim has similar degrees and diplomas, he has basically done it all and is way up top of the league, which is what we need to hep us in our quest.Dr. Lew Lim is an engineer and a Doctor of Natural Medicine with additional diplomas in Medical Neuroscience and Business and Accountancy. He obtained his degrees and diplomas from the University of California at Berkeley, University of Sheffield, Duke University, Quantum University and The Chartered Institute of Management Accountants, he talked about the Vieligh in some length in this audio blog , i found it amazing to listen too, and i believe hes not just in it for the £ & $ so if u havent i would like you and others to take a peek hes an amazing man,a man im sure we need…anyways ive talked enough please forgive me Reah lol…Thanks again you have made my day, thought i was talking to myself, hehe Again !! winks
WelshBearuk aka Hugh James a 25 year old parkinsonian
Hi @welshbearuk,
You’re more than welcome. I’m so glad that you appreciated my response, I really didn’t want you to think that you were being ignored so your response has also made my day - snap! 
You’ve shared some really fascinating information which I’m sure our members will find interesting. I look forward to see you around on some more threads on the forum.
Best wishes,
Reah
Apologies. For various reasons, I’ve been away from the forum.
This system is complete and utter nonsense. The near infrared sauna is nothing more than an electric heater. The headset is a complete con. Photons of any description cannot possibly pass through the skull. They simply don’t have the energy. That’s basic physics. You can’t shine a torch through cardboard, so how can lower energy low infrared pass through bone?
Sometimes I despair at the gullibility of folk. It’s understandable in a condition like PD that people will look for anything that will relieve symptoms or provide a cure, but these people should be strung up for leading people on to strip them of their hard earned money. It’s theft, pure and simple.
I agree with you.
Babs
Hi welshbearuk
It seems you are convinced that this is a reliable and effective device and worth the money.
I assume you are going ahead with buying and using it.
Please let us know how you get on…I will be a nterested in the results.
GG
hi goldengirl, im afraid if i had the money and funds , i would be the first to try out the Vielight Neuro Head set , but im not, worse luck so maybe the u.s michael j fox company would buy a couple on trial, im sure michael j fox would be first in the que , after all the MJF Organisation blast away over 50 million a year on the testing old useless drugs which have proved over the years to be a dead end street, yet they persist to follow that route
Best regards welshbearuk aka HughYankee here. I’ve just been made aware of this therapy and we may very well throw the money at it to see if it helps. The nasal clip seems more likely to be absorbed than the cranial helmet - but there have been encouraging results in mice and primates and I can’t just chalk it up to a scam. Harvard and MIT have both taken it seriously enough to begin studies.
I will keep you posted, it will probably be a while … if there arent any results, at least everyone will know that. I’m afraid that, if it helps us, many won’t believe it anyway, but I’ll still report it for those who are interested.
This article seems to refute the assertion that skull penetration is completely impossble. I’m not saying we should blindly believe it, I’m just saying we shouldn’t didmiss it out of hand.
I tried using this device but the immediate reaction was to make my tremor worse so I gave up after 3 days. It cost about £1200 but I got 80% of that returned with no issues as part of the satisfaction guarantee. I decided not to continue due to lack of trial data and concern at making things worse. It may be that although I followed the instructions I would have benefited from a more gentle initial use. It certainly had some effect - just not what I was looking for.
We settled on the neuro gamma and the X-plus. It arrived yesterday and we did the gamma for the first time today - the X/plus is still charging.
The instructions recommend 20 minutes every other day.
I’m sorry to hear about your negative experience - I’ve heard some people didn’t see any improvement, but yours is the first I’ve heard that it made symptoms worse! Glad they honored their return policy for you!!
I’ll post updates when I have any. It’ll probably be at least 6 weeks before we notica any change - if there is any.