Where do I start?
Hi and thank you for the account approval,
I'm not here looking for answers but I am wondering if my story rings a bell with anyone else out there?
Approximately 2 years ago I felt a problem with my right shoulder and arm, this was quickly followed by firstly a numbness in the right side of my face and a general feeling that my coordination had gone, I kept bumping into things, I felt clumbsy with poor balance,
Two years down the line my shoulder, arm, wrist and hand on my right have deteriorated to a point where I feel sometimes I have no control, I drop things and sometimes I find it impossible to pick up a cup of tea and I can't type on my PC keyboard or use a calculator with my right hand anymore, and generally I feel my whole right side is weaker than my left, I feel my concentration levels have disappeared and I sometimes struggle with short term memory, fatigue is also a huge factor now as I feel as though I could fall to sleep at any time of the day even after a good nights sleep the previous night, I finish work at five and can easily be asleep within half an hour of getting home,
To cut a long story short my neurologist felt there was a possibility of PD so he sent me for a DATScan, this has come back as positive but that's all the info I have at the moment, I have since been to see another PD specialist for a second opinion and I am scheduled for further tests and a Spect scan (whatever that is) but after my initial appointment she thinks it could either be PD or something called corticobasil degeneration which frightens the life out of me, she has also requested an urgent neuropsychology assessment which hopefully will throw up some answers too,
Apologies for going on a bit but at the moment it is really difficult to understand what is going on, I am hoping for a diagnosis of some sorts ASAP.
Best regards and thanks for listening