Hi, i’m new to the forum. my name is sarah and i’m 39. I’ve been having treatment for dystonia with movement specialist at queens square, my last visit they wanted to investigate my symptoms further so i had a dat scan on friday.
I’ve been ok until after my scan i’ve had lots of anxiety about getting my results as i havnt got a follow up booked. would like to know what others experiences were waiting for results and how did they receive them and how long did it take. many thanks
Hi and welcome to the forum, Sarah. You’ll find everyone here very friendly and supportive and I hope that they will be along to say hello to you soon.
Have you now had your results? It’s normal to feel worried while you wait for them. If you haven’t heard anything and find it too difficult to wait, don’t be afraid to give them a call and ask them if they’ve received anything and, if not, it’s OK to let them know how you feel. If you prefer, you can call our helpline who can listen if you need to chat. Call them on 0808 800 0303 when you are ready.
I’m crossing my fingers that you’ll hear soon and will have a good chat with your doctor or Parkinson’s nurse about the results. Don’t forget to let us know how it goes.
Best wishes
Janice
Forum Moderation Team
Thanks so much Janice. No results yet, i’ve decided to wait until friday and then maybe chase them if this anxiety won’t budge.
1 Like
I’m in a similar position. I had a MRI scan which came back as inconclusive. I’ve just had a DAT scan. The nurse said that it could be anything up to a month before the results come in. Waiting with fingers crossed…
@kevhopgood The waiting is horrible, i’ve got so much anxiety 
let me know how u get on.
best of luck 
I’ve got an appointment with a Neurological Physio place in October. I’ve been told I won’t get a diagnosis until then, which seems quite a while to wait…
Hi Sarahmtk,
Firstly I’m amazed that the results of a datscan should take that long.
Mine took 2 days.
However that is besides the point.
Please remember that a datscan is not the only method of detecting PD, and at times can be wrong.
My neuro diagnosed me over 2 years ago now, and I went for a datscan about 9 months thereafter.
I was informed by them that from their analysis I did not have PD.
I was elated for a few months until I realized that that they had forgotten to tell my PD that I did not have it, and it continued on its long and tortious path anyway.
And yes,I have had Dystonia for over 5 years now.
Just got my diagnosis, which is that I have Parkinson’s. After months of not knowing because of a breakdown in communication between King’s and my GP it’s almost a relief. It would’ve been good to find out via a face-to-face with a consultant rather than the e-mail I received. I know the NHS is under pressure but still…