I have suspected that I might have PD since 2008, and at that time I spent quite a bit of time on this forum. But I ended up with a CFS diagnosis, even though I had symptoms that didn't really fit. I have been unable to work since December 2005.
I have had a problem with freezing for years but my GP always ignored me when I tried to talk to him about it. As far as he was concerned I had seen a number of neurologists and there was no need for any further investigation. I stopped even trying to talk to him about this and other symptoms like increased stiffness, problems with my handwriting and some problems with balance. I have been gradually getting worse over the years, but the last few months the freezing has become worse. If I'm in the supermarket and my wife calls me from behind I struggle to turn. I have no doubt I would sometimes fall if it wasn't for the fact I use a walking stick. Turning is generally problematic. I also often get stuck when I start to walk.
I had to go to the doctor in January because of problem with a trapped nerve in my elbow. My usual GP wasn't available and I had to see one of his colleagues, so I took the chance to talk to her about the freezing and the other symptoms I have. I told her how I have gradually got worse over the years. She briefly examined me and said she thought I looked like I have Parkinson's and would send me to see another neurologist.
I received a letter from the hospital about 3 weeks ago to say I'm on a waiting list to see a neurologist and they would contact me 6 weeks before the appointment. It looks like I could wait months before I'm seen. In the meantime I'm back in limbo again. I know the speed of diagnosis isn't important in terms of the effectiveness of treatment, and had no baring on the progression if it is PD I have, but I still feel a bit lost again.
I pushed so hard to get a diagnosis in the beginning and gave up even trying as the constant pushing was just too much for me, especially after I lost my son. Added to that the more I pushed, the less they seemed to believe me. I am hoping this will be the end of 8 years of uncertainty, although there is no guarantee. I don't want to have PD, but if I have it I would like to know and get treatment. At the moment I'm capable of doing so little and I'm hoping if it is PD and I get treated I might get some of my mobility back. I just hope the appointment to see a neurologists comes sooner rather than later.