Hubby walks four hours has his lunch then walks for another 4/5 hours until he has his pump fitted has anyone any idea how I can help him rest. He has no medication for pd until pump is fitted he’s so done in thanks for reading Margaret
Hi @arnold77,
I’m sorry to hear that your husband has been having trouble resting. It’s not uncommon for people with Parkinson’s to experience restlessness. We have a lot of information on our website with some useful tips on how to help with this which you can find here, Sleep and Parkinson's | Parkinson's UK.
You might also find it helpful to contact our helpline and speak to one of our advisers about this on 0808 800 0303 for information and support.
I hope you find this useful.
Best wishes,
Reah
Why is he not on oral meds I had this problem allsfnighter wandering on holiday n it’s horrible pump will take a while to work I hope he finds some peace it will pass over eventually get a private consultation it might help
Sounds like he’s doing excellent to me it’s exactly the sort of thing you need to do if you want to stay fit through Parkinson’s walking is so beneficial so he’s you should be very proud of him for doing that but if he’s not on any medication now then there’s no way he should be going on the pump as a first step app
Hi please contact your Parkinson’s nurse or neurologist. It sounds like you need to increase your dosage and possibly introduce pramipexole (dopermine agonist). You and your family should be aware of possible compulsive behaviours with agonists.
Don’t suffer if you don’t need to. I have awful symptoms when my meds are not working and I struggle with seeing a future for myself. Hope for a treatment keeps me going.