Any advice would be much appreciated.
As this subject has been raised i feel brave enough to mention my bladder probs.
May 09 visible blood in urine
Refered to Urologist and underwent all tests
Ultra sound,x-ray clear in June
Cystoscopy camera proceedure into bladder in June to check for cancer.
In agony following proceedure which i feel went wrong.Bleeding following which went off.One week later Weeing pure blood and back to docs.The reult of the cystoscopy Negative or okay.
Soon after rushed to hospital in agony in bladder,pain on passing urine,plus frequency(non of these evident before proceedure)
Tests done nothing showed up.
Sent for scan result inconclusive, booked for op
Op cancelled,deemed not necessary
Put on concoction off pills,Tramadol,co codamol,Diclofenic,anti biotics,ones for possible prostrate problems.
Went back to hospital by Ambulance further 2 times,nothing found.Panic attack because of meds.Came off the lot.
November 09 had scan to check for blockage
Diagnosed with PARKINSONS in November
Saw urologist February 2010 result of scan clear.
Mentioned to him about Parkinsons diagnosis.He said"that's what the problem is then".
I'm still in pain,can't bear pressure of seatbelt on bladder,wear loose fitting tracksuit bottoms most of the time,and flare ups of Bladder/urination pain etc.
Seeing the Urologist again in 6 months with no answers apart from switching the whole lot onto Parkinsons.Have also had bowel proceedure for associated pain probs there,also coming back negative.
Just thought i'd get that off my chest as its been a really worrying time.
I'd imagine there are many out there who have gone through similar,but its so frustrating.
All the best
I too like Myway was prescribed Vesicare (5mg) for my bladder problem (2years ago) Within a week I was back to normal and so far it's still working. There is also a 10mg tablet available if the 5mg dosn't work. There is a help line who provide advice. Hope this helps.
I discovered that sinemet residue in pee plus quantity of chlorine bleach left in pan after cleaning = bright red pee in toilet bowl giving appearance of having peed blood. Discoloraation of pee is a known bye product of sinemet but I think mine was a bit more dramatic than expected.
The consultant was rather pleased with me for finding something he didn't know ...he had confirmed the possibility of what I had suggested (whilst I did another sample) by....looking it up on the net!
However I still keep a watchful eye as I have had cystitis quite frequently in the past. Bladder control varies but seems unrelated to the bright red episodes.
'Pain in Parkinsons' by Dr KR Chaudhuri
'Non Motor Symptoms in Parkinsons'
'Non Motor Symptoms Questionnaire'.
Hope these help you.
I read your post with great interest. I have had Parkinson’s for 9 years now and up until recently it’s been well controlled.
But, for over a year now I have been under the care of a consultant urologist for bladder pain. No evidence has been found for any physical problem, scans of everything all,clear, and I’ve had all sorts of drugs - antibiotics, weak bladder drugs, increasingly strong pain killers (now morphine!) to no avail.
Meanwhile the pain has become increasingly bad and on one occasion resulted in a trip to A&E. Sleep became a forgotten luxury.
The intensity of the pain now ebbs and flows with the level of dopamine in my body, and because of the pain and sleep deprivation my off periods are pretty much running into each other.
Situation as at today is better. Calling 111 yesterday resulted in a prescription for liquid morphine. For the first time in a long time I actually slept after taking the morphine at bedtime. The pain is still there, but more manageable, and my off periods are also, so far, shorter and manageable. This is clearly not a solution, can’t take morphine forever, but today there is some light at the end of the tunnel.
Everyone’s experience will be different, but any thoughts or observations, or your own experience, will be appreciated.
Thank you for reading my ramblings.