As briefly as I can, this is the story:
I was diagnosed with Parkinson’s in August last year and since then I’ve been on a low dose of madopar, until a month ago, just 3 12.5 capsules a day.
My symptoms mostly related to my left side.
In April 2018 I spent a couple of hours at an outdoor event on a cold day. I was standing still for most of that time and my leg muscles tensed up. Went to walk away, and suddenly my left leg was in agony, and I was barely able to walk.
Since then I’ve had big problems with my left leg. The type and place of the pain varies, but I think every muscle and tendon has been painful at one point or another over the last few weeks. The intensity of the pain wakes me up at night, when I usually have to take painkillers. I’m walking slowly and painfully, and for the first time having difficulty with stairs.
I’m not sure whether I should be doing physiotherapy, or thinking about increasing my madopar dosage. I have increased it by one pill, so now 4 x 12.5 a day and it seems to be controlling my other symptoms well. I don’t have any balance problems or difficulty turning. I do have a slight tremor in my left hand.
If physio, should I be seeing a neurology physio or a regular physio?
I’m seeing my GP about it tomorrow. Got an appointment with my (private) consultant next week. Phoned the Parkinson’s nurse, whose answerphone message says she will be available for one hour next Tuesday, so not much chance of speaking to her.
Feeling rather down and fed up about it at the moment. I had deliberately kept my madopar dosage low, because I thought it was the thing to do, but maybe it should just be increased so my symptoms are completely suppressed. In the last month a holiday in Italy was ruined by my poor mobility. It was the first holiday my husband and I had had together in seven years, mainly because of my caring responsibility for my mum.