My last post (called “It’s getting worse folks”) set out the position about a month ago. Well since then it has deteriorated.
My wife’s bladder problems continued going to the toilet ten times a night which involved me having to get her out of bed and then showing her what to do when we got to the toilet most times because she didn’t know. she had three course of antibiotics for. UTI and two drugs for overactive bladder none of which made any real difference.
Because my wife is bigger than me (thanks PD drugs for putting the weight on), I have to use a bit of force to get her out of bed and help her to move. that led to her demanding me to get my sons outof bed at 12.15 am one night last week to accuse me of domestic abuse. Fortunately my lads know me better than that.
We were visited by a lady from a psychiatric-related unit a couple of weeks ago and they suggested an extended stay at a local hospital which has a multidisciplinary team which can look at all of the symptoms of brain related diseases, PD, Huntingdons etc. We both thought this was a good idea and we were looking forward to her admission last Thursday. the plan is that they wouldn’t assess over over a 6 week period and because she was being monitored 24/7 they could titrate drugs more easily and observe changes.
I went in to see her on Friday and she had invented this alternative reality where she thought she was in a hotel running murder mystery events. The son of the owners of the hotel had taken a liking to her room and wanted it. He had moved her clothes out of her room and brought in his own and he only got her clothes back when he put a spell on the room. By Saturday she wanted to come home and said that she didn’t want to stay there so this man could rape her. By yesterday she was simply furious with me for not taking her home and said that she hoped I could live with myself. I have explained that this is a hospital and that no one is spying on her, they simply want to observe her, so that they can get her treatment right. She thinks that I just want to leave her there so that I can get on with my work. She says that we went to a house yesterday with my lads where “ the mob”was there doing “mob things like talking about killing people”.
This has all come as a huge shock to me as I never expected any of this. the consultant has suggested that it might be a reaction to being admitted but its a pretty extreme reaction isn’t it?
I know that bringing her home would be the wrong thing to do because she needs to have those 24/7 observations if we are going to be able to treat the mental issues, the incontinence, the anxiety, the mobility issues, the confusion, her tremors, her drowsiness during the day. but I worry that if I don’t bring her home, her resentment will grow and, even if we do get her back, what sort of a marriage will we have?
I need to protect my lads too. My youngest is 18 and is going to Uni in three weeks time. It should be a really exciting time for him but it is being robbed by all of this drama. My eldest has had some mental health issues in the past and had a panic attack last week when his Mum accused his Dad of domestic abuse. If I bring her home whilst they are both here, then if she loses the “hotel reality” she has built, will our reality replace it, or will she invent something else potentially more damaging. What harm might that do to them? And what if the domestic abuse accusations start again because I’ll still need to help her move?
I probably need to give her time to adjust in this hospital, I think, and hope that she eventually sees that it is for the best that she stays there. I haven’t suggested that my lads visit as I am scared she will try to get them to help her leave and then resent them too if they don’t. they both think it is best for Mum to stay where she is.
The pressure I feel to make the “right” decision is immense and I fell like I might need some drugs to stop my brain from running at 100mph every day thinking about this stuff. I am exhausted by 8am every night just from thinking about it and I worry about what each daily hospital visit will bring, and we’re only 5 days in!
I’m going to call the helpline later but any other thoughts would be welcome!