What makes a diagnosis official?

Hi, I have recently been diagnosed with Parkinson’s - I posted on the Introductions section about this - but I have not been told personally.

My question is at what point do I have to inform the DVLA and mention the condition when I apply for holiday insurance etc.

My situation is this. I went to a neurologist last November because of a pronounced tremor on my right side. I did not receive a personal letter as a result of this consultation but a copy of the letter sent my GP where I was referred to in the third person as “This gentleman”. This letter said that his symptoms were not typical of Parkinson’s but that an MRI scan would be arranged and after that a DaTScan.

The results of the DaTScan came back this week but again I got no personal letter but a copy of the letter sent to my GP from a different neurologist and again referring to me in the third person as “this gentleman”. This said that the scan was abnormal and showed reduced dopamine on the right side and that together with the symptoms detected by the first neurologist indicated he
had Parkinson’s. It also said that he would not need medication immediately. A separate letter came offering me an appointment in August with the neurologist.

So do I now officially have Parkinson’s or should I wait until August when I should have official confirmation from the neurologist.

Mark

Hello MarkDD
I understand your dilemma. You could ring DVLA and ask their view but personally I would inform them now and not wait. It is the driver’s responsibility to know if they are fit to drive but it is worth remembering this
You could be fined up to £1,000 if you do not tell DVLA about a condition that might affect your ability to drive safely. You could also be prosecuted if you have an accident.

You could be in an accident that is not your fault but could anyway put you in a difficult position if serious injury was sustained by you or anyone else. Most usually the DVLA will grant 3 year licence in the first instance. It is ultimately your choice and your decision but I wouldn’t want to chance it and would tell them now.
Incidentally letters from hospitals are often written in the third person i have no idea why!

Hi Tot,

You’re right. I have now informed DLVA.

Mark

Hello Mark
I am glad you have decided to do that. All being well there is no reason why you cannot carry on driving for a good many years as many with Parkinson’s do. I hope you are satisfied you have made the right decision for you.
Best wishes
Tot

Mark
I would also notify your car insurance provider. We did this and it made no difference to our premium, level of cover, or renewal offer. It just gives you the confidence that as they know, it cannot be used against you in any future claim. Insurers appear to be happy if DVLA are aware.

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I hadn’t thought of that. I will inform them to make sure I’m covered. Thanks