I just wanted to add something that may help as its from our own personal experience.
To say that everyone’s PD is different is sadly very true…everyone’s journey is different, symptoms, pain levels…its so hard to figure out what’s best for you and the sad fact is most Neuros and GPs still use the generic template so they stick everyone in the same basket and almost hope for the best.
My husband has had 3 GPs and 4 Neuros and finally after a lot of kicking and screaming we have never been more “sorted”
My basic point is this…if your GP is rubbish, move GPS…we did and we now have the most amazing GP and that is invaluable.
We had 3 decent run of the mill Neuros but our GP recommended the Neurologist we have now and she is young and quite honestly a breath of fresh air.
I find the field is quite stagnant and the neuros quite set in their ways so you get “maintained” rather than having someone who is trying constantly to get you a better standard of living.
We went from having no one to a GP worth his weight in gold, a Neuro who is at the forefront of all studies and is willing to try anything, and a PD Nurse who fills in the gaps.
Don’t settle is my absolute point…if you aren’t happy vote with your feet and find a new GP a new Neuro, whatever it takes to make you feel like you are understood, listened to and given everything you need to help you deal with your journey.