What would you do

A quick time line Oct 2023 referral by GP, July 2024 1st hospital appointment, June 2025 2nd appointment, July 2025 Dat scan, Jan 2026 results of Dat scan and diagnosis of PD. During the phone call in Jan was promised a quick face to face to talk about diagnosis and review of meds. At time of writing Sept 2026 still waiting for that appointment, have phone number times, spoke to GP (who told me to ring again), spoke to PALs service they sent email, got email back to say they will arrange an appointment but nothing more. Nothing more I can think to do to get this appointment.

Is it time to just give up, get a plan in place to come of my Madopar and let nature take its course.

Hi @Johanmb. We are really sorry to hear about what you are experiencing and want you to know we are here to help.

Please do call our free, confidential helpline on 0808 800 0303. Our specially trained advisers will be able to answer your questions and give you advice on getting a plan in place to get your appointment.

You do not have to do this alone and we are here if you need us.

Parkinson’s UK Moderation Team :blue_heart:

1 Like