When care at home becomes too difficult

Hi, I am new to this forum, thank you for having me.
My Dad is in the late/ advanced stages of Parkinsons. He can barely walk or do much for himself, has constant delusions and needs attention and care for all his needs. My Mum is his 24/7 caregiver. We are a small family and I do what I can but have a full-time job and other family commitments. My mum is struggling and is worn out. Trying to speak with her about what needs to happen next is difficult. As a family, we need to plan ahead before a real crisis hits. Any advice would be appreciated on what our options are, and how we go about securing his (imminent) future care. Mum will fight him going into a home, and she would be resentful of others coming into their home taking over the care - at the same time she is on the edge of burn out. How do we begin to consider what is available and how do we go about getting it? Thank you x

Welcome to the forum @KatBell and thank you for reaching out.

We are sorry to hear about your dad’s diagnosis and the challenges he is going through. We understand how difficult it can also be for loved ones who providing the support so it’s only natural for your mum to be feeling this way. We are sure our forum members will be able to share their experiences.

You are not alone in this, we have some information on our website on what to consider when Parkinson’s reaches an advanced stage

Our helpline is also available if you would like to speak to someone. Our trained advisers can put you in touch with one of our specialist nurses. It’s free and completely confidential: 0808 800 0303.

Take care :blue_heart:
Parkinson’s UK Moderation Team