Hi @listercat , welcome to our forum.
It sounds frustrating to have waited so long for that first appointment only to come away without the chance to ask the questions that mattered to you.
If you think that speaking to someone in our team would help, you’re very welcome to call us on 0808 800 0303 - we’re always happy to talk things through.
We also have this page on Co-careldopa that you may find interesting, and this thread from other members of this forum.
You’re very welcome to keep asking things here. There’s a lot of lived experience on the forum, and you don’t have to wait until May 2026 to get support.
Sending our best wishes
The Parkinson’s UK Moderation Team 