I was diagnosed when I was 58 in 2010. I was living in Scotland at the time running a business with my husband. It started with a slight tremor in my right hand whie we were on holiday abroad. After a spect scan it was diagnosed as PD, which was devastating. after a while I was started on Requip XL 2mg. which gradually increased to 18mg. I also began taking Sinemet, but was admitted to hospital with chest pain fearing a heart attack. It was thought the pain was a side effect of the Sinemet. I was swtched to Madopar 12.5/50 mg.When we left Scotland to move back to England in 2013, I was taking 9 Madopar per day, 18mg requip XL, and Domperidone for the sickness and dizziness.Within about 6 months the Madopar was increased to 10 per day and Requip XL to 24mg. Because my symptoms weren't improving, i was presribed Entacapone, then after that didn't work, Tolcapone.I'm still taking these 3 x 100mg per day. With short lived improvement I was trialled with Apomorphine injections, which just made my head feel like it was about to explode, so that was discontinued
i am currently, on the advice of the PD consultant, reducing the requip XL gradually to 12mg. I am at my wits end. Its a living hell, with freezing, painful leg muscles, little sleep, constant pain and discomfort. I'm an avid computer geek, love sewing and knitting, but I'm finding it more and more difficult to do any of these. No-one told me PD could be so painful. Sometimes I can,t lift my hand to feed myself.
I feel as if I'm rambling on, but what I would like to know is, is there anyone out there whose Parkinson's is controlled with their medication?
Thanks for the opportunity to vent my feelngs.