Constant pain, a curse that no one told me about. I was diagnosed in 2005 and although I'm a tad overweight I've always been reasonably fit and mobile, until about 18 months ago when my lower back started giving me gip. Initially my left leg played me up and I was told the my sciatic nerve on that leg was damaged, which made life miserable but tolerable. Early this year I visited my GP to get advise about the constant back pain, I was sent to the Musco skeletal department of my local hostipal where I was given exercises to do, then as this hadn't improved things I was then sent to tai chi classes, although entertains the exercises actually gave me more pain. Acupuncture and massaging gave me temporary respite but the pan only reduced and didn't disappear. Apparently my lower spine has nodules protruding which are slowly pressing on the spinal nerves and as these grow so they will increase the pressure on the spinal nerves. In September this year I flew to Turkey on hodilay, enduring a 4 hour flight, during the flight my right leg started aching then a further 4 hours spent on a coach to the resort made my right leg spasm and since then I am in constant agony. Paracetamol and codeine give slight relief for a short while, Oromorph resulted in constipation. I can only assume that until the nodules are removed my pain will only increase and I will be reliant on a mobility scooter to get around. I apologise for my rant but thought I'd share my load and perhaps lighten yours too.
Now the list of medication is extensive, I started taking 3mgs Ripinirole 3x/day in 2005, now I take
12mgs requip XL, 437.5mgs Madopar, 100mgs Symmetrel Amantadine, 1mg Rasagiline for breakfast
437.5mgs Madopar, 100mgs Symmetrel Amantadine for lunch
375mgs madopar, 300mgs gabapentin for tea
200mgs madopar CR, 300mgs gabapentin for supper
plus of course paracetamol and codeine 4times per day
I'm still active though and organise my support group meeting each month and refuse to let PD run my life