Before I knew much about Parkinson’s, I thought it was mainly about tremors. The more I’ve learned, the more I’ve realised there are so many symptoms that people don’t often talk about.
I’m curious to know which symptom has had the biggest impact on your day-to-day life. Was it one of the more obvious physical symptoms, or something less well known like fatigue, stiffness, sleep problems, anxiety, loss of smell, or changes in your voice?
I think hearing about other people’s experiences can be really helpful, especially for those who are newly diagnosed and trying to understand what Parkinson’s can be like.
Looking forward to hearing your thoughts. Wishing everyone a good day.
It’s funny how many work colleagues when I told them I had PD were like ‘so you shake a bit’, it’s one of those things that until you have or know someone that has PD it does seem like it’s all about the shakes.. I was a bit like that as in I suffered from unexplained stiffness and cramps a good couple of years before shaking but it’s the shaking and the fact my arm didn’t move when walking that got me to get checked out and by that time I was also showing shuffling when walking, slowness in eye movement and swallowing issues, things I hadn’t really noticed or connected but the neurologist clocked immediately.
so stiffness has been a big thing for me. It’s mainly fatigue now and it’s especially frustrating when my brain is ‘right let’s get up and at it today’ but my body is going ‘yeah, right’
Hi zah12. Very good question and I’m delighted to give you answers:
My biggest problem with PD is lack of balance. Also deafness. I’m about 80% gone now. Another irritation is the speed at which PD progresses. In my case I have succumbed in about 2 years.