I am currently 43, was officially diagnosed at 39 and had started displaying symptoms at 36. I have experienced a range of symptoms, and also have family history on both sides that cause added concern. I have been told on several occasions that my case is quite complex and have tried to condense down as much as possible here, as the larger picture is very much larger!
To briefly summarise my query, along with mobility and tremor, I get dystonia in my feet and chest. Feet are very painful, but pass and I can get on with things. Chest can be persistent, highly unpleasant and last for a couple of days up to a couple of weeks. GPs tell me to contact specialists, and specialists ask me to get checked out by GP to rule out other, non PD causes beforehand. 111 refer me to 999 because I mention chest pains. Ambulance or Emergency refer me back to GP or specialist because it’s muscular and non life threatening. Trying to get any advice outside of appts is near on impossible and appts can be weeks, sometimes months away. I don’t like asking for emergency slots with the GP, because I know the root cause is ongoing, that they will say to see the specialist, and feel that I could be taking a slot from someone who does have urgent needs. So I am left lost, not knowing where to go, trying to manage myself or hold out until the current episode passes. If anyone has experienced similar or has suggestions they would be greatly welcomed.
Thanks in advance.