Who Cares & Who Cares
From my experience if you live in Brighton, Sussex the answer is nobody to both questions.
I was diagnosed about a year ago. At least I think so. The neurologist couldn’t seem to decide and the nurse said if the meds aren’t working then I don’t. And they aren’t, never have, and make me worse.
I have tried several meds but now I’m back on the madopar. It didn’t work first time and is even worse this time. I can barely stand or move my feet. Of course the obvious thing would be to stop them. Yes, if I could get someone to see me and change the medication.
The GP is the obvious choice but he tells me he knows nothing of the meds I need. There is a Parkinson’s nurse. You will find him at a week long meeting, on holiday, training or sick = NEVER. In every job in the country there is always a replacement, not in this health authority.
Two months on from again seeking help again I find there is none. Nobody cares and nobody cares.