Hi all, new to joining the forum but I have been lurking for a while.
The wife and myself care for her father and mother, mother has PD and was diagnosed 22 yrs ago.
To fill you in with the complete story, we bought a bungalow in 2010 and immediately built on a self contained granny annex for my inlaws. F-in-law was undoing going treatment for bowel cancer at the time and m-in-l was doing ok with only mild symptoms, and that's where it started to go pear shape.
M-in-l has gone down hill rapidly from there with dementia, incontinence, depression, anxiety and a general feeling of being unwell.
Neither of them have read anything on the condition, joined groups or taking the slightest interest as to what they can expect. If we try to help they tell us they're under the specialist at the hospital and he'll inform them if there's something they need to know, but at their consultations neither of them ask questions.
Every time there's a new condition they act totally mystified as to what could possibly be wrong, if we try to advice them we're looked at in a very dismissive way and are strongly told that there's an appointment booked with the doctor in 2 months they'll ask him..
It's heartbreaking to see them doing so badly but are too stubborn to accept help from anyone or anything, we're totally at our wits end to know how to help. F-in-l is convinced if outside agencies come in they'll whisk her off to a mental institution as they did in the 1920's and he cant be convinced otherwise.
We're all in a totally impossible situation and cant see wood for the trees.