I find myself in position at work whereby I am expected to attend a stage I absence management meeting even though I have had no time off in years and my capability has not been questioned; the reason that I am expected to go? I have requested a little more support. My main need is that somebody at work, anybody at work in fact, occasionally speaks to me about Parkinson's and helps me to get 'tweaks' made to adjustments as things change.
This is proving to be tricky but I am told that I have rights. In an effort to find out what these rights are, I dive into the all-too-familiar sign-posting bonanza and I get an answer - I've no idea what it really means, but hey ho.
Apparently, the DDA "does not permit an employer to justify a failure to comply with a duty to make a reasonable adjustment. However, an employer will only breach such a duty if the adjustment in question is one which it is reasonable for the employer to have to make. So, where the duty applies it is the question of ‘reasonableness’ which alone determines whether the adjustment has to be made."
Hmmm, back to square one so I try another route. This time I am advised that the only way to get an answer to my question is to ask a laywer. I don't have the money to pay for a lawyer, especially with my looming homeless/ jobless status, so it seems that I (we,you, they.....) only have enforceable rights if we can pay to have them explained and then enforced.
I'm pretty sure that there is no place for Parkinson's Disease in my organisation and I won't get another job (my personal experience so far has been that people don't like Parkinson's, it embarrasses them, it doesn't sit comfortably in today's image conscious society) and I won't qualify for benefits.
I may survive round two of the never ending cuts, but I'm out sooner or lager and so I guess I'm wondering how to plan, how to move forwards? My current approach of eating peanut butter by the spoonful and almost compulsive scab picking is clearly not going to achieve much and I really have no idea what to do.
Sorry for the pretty long moan.