Worried about MSA

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1

I have been diagnosed with Parkinsonism in August last year but am worried about MSA as I have bad Orthostatic Hypotension. My MRI scan was clear. Does this mean I cant have MSA? Thanks

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2

Hello Rob28 and thanks for sharing this.

Our friendly community may be able to offer you some advise but we would strongly recommend speaking to your GP with your concerns to get a full medical opinion.

All the best

3

MSA is a type of Aytipical Parkinsonism. A clear MRI does not mean that you do not have MSA

4

Thanks. I have spoken to a nurse who advises me there is nothing to suggest MSA at this stage but I am at a very early stage of parkinsonism.

5

Did you receive a diagnosis of Parkinson’s Disease or Atypical Parkinsonism. If the latter then you would generally have one of about 5 problems.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/parkinsons-disease/atypical-parkinsonian-disorders

6

I was just told Parkinsonism. Positive Datscan and negative MRI.

7

Hi Rob,

We’d strongly recommend you reach out to our free and confidential helpline on 0808 800 0303. An advisor can help you sort through diagnosis terms and will likely be able to assist in ways you haven’t even considered. They’re a wonderful team and always happy to help.

Wishing you the best,

Jason
Forum Moderator