I’ve joined this forum as I have a parent suffering from PD.
To rewind my Dad was diagnosed with PD in 2013. From what I understand the early symptom was a small tremor in one finger and tingling in one arm. He went to a GP who was very quick to say “I know what this is” and give him a diagnosis of Parkinson’s.
He wasn’t initially given any sort of scans, and the diagnosis was based predominantly on self reported symptoms.
The main course of treatment was a prescription of Stalevo, at a relatively low dose.
As his symptoms have progressed I’ve never noticed the medication having any sort of positive effect, in fact the opposite is probably more noticeable. He slumps more, becomes very tired, seems less able to speak and move.
He’s currently at a final stage level of health where he requires help to do everything from eating, to washing, etc and is unable to walk. His dose of Stalevo has increased as his symptoms have progressed.
He was given both MRI and DAT(?) scans at one point (within the past 2 years) and neither showed anything that would suggest he had Parkinson’s, although I understand neither are reliable diagnostic tools so this could just simply be a false negitive.
One thing I’ve always wondered is what if someone was wrongly diagnosed (due to the imprecision in diagnosis) and was prescribed Stalevo? Would it effectively induce the symptoms and degeneration associated with PD?
It’s more out of interest than a belief that this could be a possibility. The most likely is his Parkinson’s doesn’t respond well to medication, and it’s just bad luck.
Thanks in advance for any advice, personal experience, or medical knowledge your able to share!