Those words were issued to me two years ago now, the same year I lost my wife to cancer, the same year I lost my mother following a stroke … no idea why I was dealt this bad deal.
Hi everyone … hope you’re all getting along as best as can be in the circumstances.
One word sums up this awful disease as far as i’m concerned … “Frustrating”. Frustrating in that:
Once upon a time you could lead an ordinary life.
You want …but you just can’t now.
Walking long distances.
…and many more things …all very frustrating all the time.
Then add into the equation, living alone, semi remotely, miles away from family. Medication not working (as it does for others), a Parkinson’s specialist who resigned last year and has not been replaced by the hospital in question, a Parkinson’s nurse who rings up once in a blue moon and a local GP who ‘doesn’t want to interfere’???
I don’t know about funds being needed (as they are) but an 'understanding’would be a great place to start perhaps. The following years look like they could be fun for all the wrong reasons … bring it on, but go easy on me eh?