Sasha, as i’ve only been on the higher dose of Madopar for just a week it is early days yet but will let you know if there is any significant difference. As you say, everyone who has Parkinson’s is different in many ways, very few are the same. Regarding DBS, it is good to do research for your own peace of mind(I had mine done at Addenbrookes Hospital, Cambridge under Mr Colin Watts, Neurosurgeon. Dr Philip Buttery was my Consultant). I was given a four page Information sheet to read produced by Parkinsons Disease Society. Before my operation the procedure was shown on tv and I was determined to watch it !! My wife said,“Are you sure ?”, I said,“Yes.” I did watch it on two separate occasions, different people, I believe one was in USA !! Remember, I had two tremors, the Dystonic which has been about me since my teens and the Parky one. Come the day before the operation as I was waiting to be admitted, the scaryness/daunting of it all hit home and I did break down in front of my wife. Come the operation I needn’t have stressed so as when it happened I didn’t know anything about it, if anything I was feeling gung ho and positive in attitude on the day. The DBS has helped no end with Parky in fact after the operation I was a different person, no longer was I wobbling like a jelly !! DBS has given me some sort of life back,
Six years on and having had the battery changed(March 2018) and am now under the control of an i - pod but back in January I noticed that a tremor was back in my hands which is one reason for seeing my Neuro Man. I now need for the Dystonic side to be sorted. Take good care of yourself, you know where to find me should you need to talk further !! All the best.