Interested to hear your story. Thanks for replying.
My neuro just told me to reduce meds by 2mgs. every fortnight or so, until I was off all Ropinirole. I still have to take 10mgs. of Elderpryl, (Selegiline), every morning and 5mgs. in the afternoon. He was not very helpful and said the whole exercise was up to me to decide whether to try or not. I left my appointment feeling rather confused and a bit of a nuisance. I'd waited 18months. to see my neuro, because of a backlog and I can honestly say, he spent more time talking about how short staffed they were and how his colleagues were retiring before him, then coming back part-time and earning more than he was!
As a result, I asked to see my PD nurse, who explained things in more detail. She said Ropinirole did little good and that the only medication that made you feel better was Levodopa. However, after being on Levodopa for 5yrs. I would probably develop twitches and jerky movements!! She spent most of the time scribbling notes and wasn't interested in offering support.
I am a young at heart 66yr. old, with barely noticeable PD symptoms, to the outside world. So you can imagine how I felt when she told me that. Now, I am even more confused and feel no-one really cares what I do. In fact I am thinking of changing hospitals!