I'm sorry to hear about your experiences. I suspect this is common; I was diagnosed in April 2012 (age 33) and it took 3 months from being told I MIGHT have Parkinson's to confirming diagnosis. It was the worst three months of my life. I was in no mans land; I could neither come to terms with Parkinson's because I had yet to be diagnosed (that "might" included a might NOT) or get on with my life with a Parkinson's sword dangling above me. During that three months I was offered no professional emotion support. I was left to the internet and to my despair. This process should be better, easier, take less time. I understand there is no diagnostic test for Parkinson's so it is a difficult diagnosis (I too had blood and urine tests and an MRI scan). BUT the way it is done at the moment, IT IS HELL! IT IS A HORRIBLE EXPERIENCE! IT IS EXQUISITE TORTURE TO WAIT SO LONG TO KNOW IF YOU MIGHT OR MIGHT NOT HAVE AN INCURABLE, PROGRESSIVE DISEASE!
PARKINSON'S UK YOU MUST CAMPAIGN FOR A LESS PAINFUL WAY TO BE DIAGNOSED!
Sorry, but it upsets me that others are going through the same hell as I did. Don't get me wrong, I don't blame the Doctors it is the NICE guidelines that are at fault. There must be some sort of professional help offered (e.g. counselling) during the wait for a diagnosis. To be unaware of the effect of telling someone they "might" have Parkinson's and offer no emotional help is deeply confusing. Imagine if you were suddenly handed a ticking time bomb and you didn't know when it would be defused (you don't have Parkinson's) or how powerful the explosion will be (you have Parkinson's).
It goes to show the burden of such a horrible time - I was relieved I was diagnosed with Parkinson's! How crazy is that?! But it was better than half knowing I had Parkinson's.
How you are diagnosed is incredibly important in setting you up for the crucial first year of knowing you have Parkinson's - it can make that year even more difficult healing the scars of the torturous diagnosis in addition to coming to terms with the disease.
I can empathise cparro. I know how confusing it can be. I hope you are ok and a declaration comes quickly (I hope you don't have Parkinson's)