Reah
July 9, 2021, 5:58pm
2
Hi @ponco ,
Welcome back to the forum.
I’m sorry that you haven’t heard from anyone as yet, however, I thought it would be helpful if I jumped in to help you.
Many of our members have undergone DBS surgery and I have listed a few threads below where others have spoken about their experiences which I’m hoping will be useful to you. Please see below:
I had DBS installed in March 2015. Earlier this week, I was assessed to gauge my progress.
My medication was stopped the night before. I could just about bathe and dress myself though walking involved a lot of shuffling and gripping of door frames. I could still tie my own shoelaces (Jubilation!). My assessment started at 9.00am and would take the whole morning. I was given a memory test and videoed performing various tasks. Then my DBS was switched off and I performed the tasks again. I…
Hi @Reah , thank you for bringing me in on this, I will do my best to reassure Caroline.
Hi @carolineb211 , I have got a DBS so I hope I can help. As it is, I sympathise with your frustration at being put on such a long waiting list and this Corona Virus isn’t helping any of us, hang in there and try to stay in positive thought it WILL be worth it when you actually have it done. Naturally, when you do go for the operation they will have to check that you haven’t got or had Covid-19. Oxford is …
Hi. I'm new to the forum. I'm seeking help in relation to DBS. My husband was diagnosed with Parkinson's 10 years ago at 47 although looking back he probably started with it at 42ish. He didnt have much of a tremour but struggles quite bad with movement especially walking. His speech is affected and he gets very drained and exhausted. He works so hard as we have our own business and the business has motivated him to keep going and he has not let the condition rule him. He's managed the conditi…
Hello al my brothers and sisters in arms latest update re my DBS referral,
This is an edited for privacy version of letter sent to my PD specialist Re: Karen Missenden DoB: 10/12/1965
Thank you for asking us to see Karen for consideration of deep brain stimulation for her young onset Parkinsonism. As you know, I have met her before as part of her Exenatide Trial, but I did not see her when she was first recruited, and therefore it was good to go over the history in much more detail today. She …
If you’d like to speak to someone about this in more detail, please do not hesitate to contact our helpline team on 0808 800 0303 - our advisers would love to support you further on this.
Best wishes,
