So sorry to hear that this hasnt been as successful as you were hoping.
Parkinsons UK have a mentoring scheme where you can get help and advice over these sort of issues. Have you tried contacting them?
Good Luck with the DBS.
Hi Lytham Lady,
I'm sorry that the procedure hasn't yet produced the results you both hoped. I'm sure other forum members who have had the surgery will reply with their experiences to give you an idea of timescales, even if everyone is different. In the meantime, please feel free to ring our free helpline on 0808 800 0303. Our lines are open between 9am-7pm Monday-Friday and 10am-2pm on Saturdays and our trained advisers will be able to chat about DBS or point you in the right direction if you need further information.
Of course, you can also sign up to our peer support service, as OxfordGills suggested, to be put in contact with someone who has experienced the same as you. You can find out more here: https://www.parkinsons.org.uk/content/our-peer-support-service
I'm sure you are already familiar with most if not all of the information contained in our Surgery for Parkinson's booklet, but here you are a link to it just in case there is information there that you didn't have: https://www.parkinsons.org.uk/sites/default/files/surgery_for_parkinsons.pdf
Best wishes for you and your husband,