Dla

 

Hi Candy

Funnily enough I do have trouble doing up my coat and laces and zips and buttons. Even when I pointed this out it didn't seem to make that much difference.

I am still managing to hold a job down, they accomodate me at the moment and do help me, then I retire in September. Someone said that I would have to claim before I retire otherwise I won't be able to get anything, whether that right or not I don't know. I find it all rather confusing. Think I will request another form and take it to citizens advice see if they can help.  

Many thanks for your advice.

 

Regards Sheila

hi sheila.   It would be better if your parkinsons  support worker fills the forms out for you & they would advise you what to claim for before you retire.

hi  sheila. i remember many yrs ago i  got citizens advice to fill my claim forms in & got nothing told my pd support worker she filled it out & got me high mobility & middle care,yes i was still working aswell .

 

Hello Gus

 

Thank you for your advice, one more question please, would I find out who my support worker is through my GP or my parkinsons nurse? I have never discussed this with anyone and nobody has ever told me that I am entitled to one, the subject has never been approached.

Thanks again!

Sheila

 

http://www.parkinsons.org.uk/content/information-and-support-workers

you can find out who your support worker is here Sheila

parkinsos nurse if dont get the link

 

Many thanks Shelly,Gus & Candy - you have been a great help to me with your advice, very much appreciated, I'm so glad this forum exists!

 

Sheffy x

Your very welcome Sheila

good luck.

Good Luck Sheila You have come to the right place this forum is brill and you will find lots of support and advice here. 

                                        All the best

                                           Candy xxxxx

How are you doing Shelly,

Have you had any news yet?

                                 LOVE CANDYsmile

shelly, its this wed in the mirror.

No news yet Candy but i called DWP today and was told the decision 'is in progress' and it should be made by next Tuesday if not before , but the journalist running the story is chasing up DWP tomorrow before it goes into print on Wednesday

Yes Gus this wednesday big grin

 

Hope it all goes well for you Shelly keeping everything crossed for you!

 

Sheila x

Thank you Sheila , hopefully it is sorted real soon i started the claim 29 weeks ago mad

look forward to it.wink

 

That's ridiculous taking all that  time Shelly, it never used to take that long years ago. The trouble is some people abused the system and falsley claimed and are still claiming now, doing that has spoilt it for genuine claiments.

 

Good luck once again.

 

Sheila

I will post the link if i can Gus

Yes Sheila i agree  one of the problems i had was i was offered a home visit at the end of last year  by Capita because of my mobility issues but i was told they did not have any health professionals employed in my area to carry them out so i had to wait till March 2014 for the assessment

Totally agree about all the false claimants  but has you say it just makes it worse for genuine people .

cheer shelly, i will go out and buy a  paper tomorrow aswell

I think you can access it online , but i do believe it is on page 27 big grin