Hi Gus thats great news the weather is going to be good in September it always seems to do well in Weymouth a right little sun trap enjoy the red arrows.
Hi Candy no problem I got my decision on the 7th August and the arrears went in on the 13th of August the decision letter took a week to arrive as well but I think this down to the bulk mailing system they use.............Paul
Hi Guys,
Thanks for that Paul, I know I am jumping the gun because I havent even had my decision but I was just wondering how quick off the mark they are regarding payments. That was pretty quick I have to say.
Shelly I guess you are right and you havent been waiting as long as some, I just think its wrong that you had such a tough time with PIP and now it looks like you have got the same problems with ESA.
If it were up to me I would have sickness benefits under one umbrella and medical evidence for one would be accepted for another.
Isnt there something meant to be like that universal credit or something??
My auntie works in a hospital and she was talking to a colleague about me and my battle with PIP, She said that any long term chronic illness and or disability that has been diagnosed by a specailist in that field. should automatically qualify that person for the standard rate of PIP without the need for an assessment.
She said that assessments should only be used when you report a deterioration to qualify for going up the scale.
Wouldnt that be so much easier for us because we would be getting our much needed help so much sooner.
Maybe she should become an MP. Its about time a human being was in charge of the welfare system.
Thanks as always Guys
Candyxxxxxxxxxxxxxxxxxx
Its a very strange benefit really because unlike DLA it focuses on the individual rather than the condition.
My functional impairment may be totally different to anyone elses so its a measure of me to qualify for whichever band of pip they award me
In my case they awarded me standard daily living but when I appealed I was able to submit to them that they had not taken in to account certain things which awarded me another 2 extra points which took me from 11 points to 13.
Strangely enough that was my original score from ATOS before as I have well documented on here my points were manipulated to bust me down to 11 points and therefore only qualify for standard daily living allowance
The whole claim process from start to finish is an attempt to save money hoping you will take there first decision and crawl away and leave them alone but were there is a clear cut case for the award of PIP and they cant get out of awarding the benefit then they do the next best cynical thing and try to water down the claim to award a lower payment.
I have to add that its been pretty grim to get this far and I can only wonder how people would cope if they had mental health issues unlike myself who has physical issues the mind boggles how these people cope in the face of PIP adversity...........................Paul
Hi Guys ,
Yes I agree with you Paul, It must be awful to have to go through this whatever the condition or disability,
But to have to go through this if you have a mental health problem must be an absolute nightmare.
A lot of poor folk who are currently changing from DLA to PIP are losing out as well so I am told.
My support worker told me that this lady who was on DLA at the highest rate, Lost her mobility component completely and was awarded only the standard rate for living when she had to change over to PIP.
She is currently appealing, Isnt that terrible, It is a prime example of how unfair and inflexible this benefit really is.
Will update if any news.
Best Wishes Guys.
Candyxxxxxxx
I think i've developed Anxiety from waiting on the outcome of e.s.a and diagnosis, so it must surely effect those awaiting P.I.P as well, there seems too be no consistency in anything and it is very hard too trust in who is telling you the truth and who is not, if they say the same thing twice it might be true??!!.
best of luck.
god nos what there going to do when they swap people from dla to pip .its meant to start in 2016 ,cant see it myself !
People with Parkinson's are mainly older and the good news is that they will probably leave this who are over 65 now on DLA.
Here's hoping!
GG
Hi Guys,
Had a very snotty person take my call today, You just have to wait he snapped!!! He was very rude.
Still no decision is that a good or bad sign I wonder. I was hoping to have one by the weekend.
Not very likely now.
Best wishes
Candyxxxxx
i would not like everybody to think people with pd are older i think its 10% in one million are dx age of 40.i was 34 yrs when dx ! .and yes they are not reassessing people over 60. i think this is wrong all these old people driving around in disability cars playing golf,tennis,bowls ahh got a bad back bull ! i think they should have medical again if not being seen by a consultant,not just take gp word for it.! And i suggest you read up about pd younger people one person every hr gets pd ! so do the maths ,! sorry gp but you've rattled my cage
one in twenty under the age of 40. lifes being robbed of having fun still ! running,playing football with grand children !
I'm sorry you feel so upset, Gus.
You had said that people were to be moved from DLA to PIP in 2016 and I was just pointing out that the older age group would probably stay on DLA and need not start worrying yet.
The fact is that the majority of PWP are in the older age group.
This doesn't mean that I don't know or care about the younger sufferers who are battling with the condition and the awful debacle of PIP assessments. I do and they have my heartfelt sympathy.
I feel you are very harsh in your views of older people with disabilities, who have just as much right to benefits...Parkinson's isn't the only. disabling condition.
All those with disabilities deserve our compassion.
GG
no worries but do you not think they should take a look at the whole picture & not just the cracks its like having no age limit to when your allowed to drive ! whats good for the ....and all that!
Hi Guys,
I was diagnosed with PD at the ripe old age of 46, its taken away my job, My health and my ability to do what I loved to do.
A few years ago I was working, I walked for miles did yoga and wore out my exercise bike.
Now I have trouble getting up the stairs, Those who are diagnosed with PD at a younger age obviuosly have to live with this condition a lot longer than those diagnosed at an older age,
As a result of this the younger sufferers will have more health problems due to the degenerative nature of this condition.
Yet we seem to be the ones who are discriminated against when it comes to trying to apply for PIP and other sickness benefits.
If I didnt have this I would still be working and holding my head up high. PD also takes away one of the biggest things. Our dignity, I am sure you will all agree that having to apply for benefits is very de-moralising.
Its bad enough having to apply for it, But to have to fight for it is worse still, Especially when the person on the other end of the phone talks to you like you have just crawled out from under a stone.
No one wants any sort of condition or disablility but regardless of age we should all be treated with the dignity and respect we deserve.
We may have PD but the last time I looked in the mirror I was still a person.
Best wishes
Candyxxxxxxxxxxx
Totally agree with what you are saying Candy , i think that is a big misconception about pd , the first thing i said to my consultant when he told me i had pd was he must be wrong that it was a 'olders persons illness ' i was diagnosed at 47 yrs old and that my consultant said to me , that i was only 47 i was at a advantage and a disadvantage , the advantage being i had age on my side and there was lots of promising research going on to find a cure , and the disadvantage being that they would expect pd to have progressed to a stage where it has a major effect on my life in around 10 to 15 yrs which at that point i would be 62 so yes the younger generation do have to live with the condition longer
As you quite rightly say regardless of age we should be treated with dignity and respect but unfortunately that is not happening in a system that is purely out to save money xxx
well said guys
Hi Guys,
I am really at the end of my tether, So much for them telling my mp I wont have to wait long, I have just been told they I have got another 4 to 8 week wait, they are waiting for the paperwork from capita they said they have had the electronic version but they have to wait for the paper one as well.
If its 8 weeks which Is highly likely I will of been waiting 16 weeks for my manditory reconsideration.
Why is this happening to me, I thought that having my MP on board would speed things up.
I cant wait that long I am going to go crazy,
I wish I never applied in the first place, I wish I was normal and that I didnt have to go through this ordeal.
I am not going to get it so why dont they just put me out of my misery and tell me now,
This is mental torture I have had enough, really had enough.
Candyxxx
i would have thought if you are not going to get anything they would have told you as this would have been easy for them & they would have ticked another of the list ! your going to be ok .hang in there.
Hi Candy
There just taking the Micky it wont be that long at all there just saying that do what I did contact your mp again on Tuesday and tell them again about your wait keep on there backs they will move to a decision then 8 more weeks i dont think so and the paper version is only usually 4 or 5 days behind the electronic version..............Paul
Thanks Paul,
I have sent another Email to my MP, I hope it wont take that long, I dont see how they can justify making me wait that long again.
Best wishes candyxxxx
Hi Candy
Just hang on a bit longer, you have gone too far to give in now! I know it is debilitating but just keep your chin up. I agree with what is said that if you have an ongoing degenerative problem that you should'nt have to go through having to have an assessment, in fact I thought that this was supposedly down in the DWP guide, but obviously they're not following their own guide lines now!!
I'm sorry you were DX at an early age, and understand how the younger generation feel with PD, it's hard, I was DX at the age of 58 and can just still manage to work, they are understanding, it helps keep me motivated otherwise I would just give in also.
Keep going!
Sheffy x