Hi Gus,
you had no problems with ATOS then.
na none a tall ,i think the picture of deep brain stimulation surgery done it ! candy lets hope they process your claim before the s--t hits the pan.
Thanks Gus,
Have you had the deep brain stimulation?
yes had it done 2yrs now in march very good ! candy
thats very good reading about atos.latest.google it news on atos healthcare .thanks candy
Hi Gus,
How do you get chosen for deep brain stimulation, Is it only for those who do not respond to medication, Did you ask for it ? I have read a bit about it and it says it is not suitable for everyone, I just wondered what the criteria is for having it, I wonder if it is more favoured by some health authorities than other, I hope you don`t mind me asking but I am interested in whether it would be suitable for me.
Thanks Candy
no thats ok candy. i was on pramipexole but suffered gambling & compulsive shopping,then was on very high dosage of co-carledopa 1075mg aday and was getting dyskinesias affecting right side also dystonic posturing of right arm & leg really bad affecting eating & sleeping so it was last result so was offered dbs.yes only 5% of people are successful for dbs.had to be access for a week in hospital loads of test mental & physical very hard.all tremors gone just a bit unsteady & balance but never regret it best thing had done,can go out & eat probably without missing my mouth, & hold a cup now ! i think there offering it to people in the early stage of pd,took about 15months to get settings right its not something like a quick fix have to be patient.have you looked at the gdnf trails going on at frenchay hospital same place where had dbs.they still want people for this.google it or go on research top of page.
Thanks for that Gus,
It sounds like DBS is something that is offered if meds are very troublesome, It isn`t something I would have done lightly but I would consider it if my meds became troublesome like yours, Glad though it seems to be working for you.
THANKS CANDY!
when i was given the choice levodopa or a dopamine agonist i was concerned about possible dyskinesias but neuro said there not has bad as they used to be and if they became troublesome in the future then DBS would be a option , i think if it was ever offered in the future i would take it anything that improves quality of life has got to be a good thing.
Well D day is nearly here i had a appointment with Capita on the 11th March but they phoned me up and offered me a appointment on 6th March ,day after tomorrow , it has been a long wait ,i asked how long it takes them to send the report to DWP Capita reckon they send it within two days , mmm judging on past experience with them i won't hold my breath 
good luck shelly65
Thanks Gus
REMEMBER TELL THEM YOUR WORSE DAY !
I have a pile of evidence for them , pictures , letters from neurologist, meds list from doctor etc
GOOD GOOD! REMEMBER I THINK WALKING DISTANCE IS 20 YARDS NOW USED TO BE 50 YARDS I THINK. TELL THEM YOU CAN NOT WALK 10 YARDS WITHOUT BEING IN PAIN & NEED TO REST.! ALSO GOING UP STEPS YOU NEED HELP & SOMEONE BEHIND YOU IN CASE YOU STUMBLE.
sorry just checked used to be 50 metres , on old dla. now 20 metres on pip MESSED UP YARDS TO METRES.
i actually can not walk very far without pain in my back and hips and ankles ,its to do with the dystonia i am getting in my right foot , physio actually gave me a walking splint and a splint for resting , thanks for the tip Gus
Well that is my Capita assessment done and dusted , i have not been very impressed so far by the whole PIP process , but credit where it is due the home assessor went above my expectations , he listened to my side of things recorded everything as i had told him , i did feel that i was able to put my side of how my day to day life was affected , it really was nothing to be worried about , , he told me to a certain extent what he was going to put in his report and the time scale he was going to recommend for PIP to be reviewed as he acknowledged pd was a progressive condition , it went very well and apparently he is sending his report to DWP this afternoon , he did ask how long i had waited for a visit i said 6 months , he said that's quite quick as some people have been waiting sine last April 
.
im glad it went well ! lets hope you get the right amount of pip.so there listing to people with pd.did they read documents & take them.
The assessor read the documents but did not take them he said he was not allowed to as it is private information if i wanted i would have to send them to DWP myself , but being has he was doing his report today i did not see the point has the report will be there before the documents he gave me a good idea of what he was putting in the report anyway , he did say for the mobility part he was saying i can walk between 1 metre and 20 metres with the aid of splints and sticks which would score me 12 points , we will see how long it takes dwp to finalise things now