Here is the link for peters coast to coast father dear. Love you many many lots
https://www.justgiving.com/fundraising/Peter-Backx?utm_source=Facebook&utm_medium=fundraisingpage&utm_content=Peter-Backx&utm_campaign=pfp-share
ABOVE 
she is a nursing assistant at the new hospital at cramlington she is always smiling but will smile even more if you contribute your dosh,
This is my youngest daughter you know the one that raised quite a hefty sum by jumping off the Tyne Bridge on a zip wire does anyone remember that well Jen and Husband Peter have sortd out thi COAST TO COAST Fundraising event cycling across from whitehaven to ths side raising a LOTTAMUNNY for us in our war with pd
see my post coast to coast on a piece of toast no this is not a boast its with me as your host will post posts updating info re distance to run tou can track progress wiyh a special coast to coast code how far they have rode I am cited no excited and even fans of NUFC Newcastle United have pledged money sp dip your bunny in the honey and give viz ya munny THANKS SQUILLIONS FRIENDS FED
As you can see this most beautiful young Lady is in fact my Daughter Jennifer, her husband Peter and his mate are doing the Coast to Coast cycle route to raise money for our cause which is the defeat ,,well delegs infact all of our body free of BLACKHEART now when I tell you that Peter was knocked off his motorbike 14 yrs ago and it was 50-50 he would lose his right leg, but he did hang onto it while the sturgeons work,,,,,what,,,, what do you say its a fish you cant go around saying,,,,, what errrm hmmm..bugg@R sorry surgeons worked away for 12 hrs to save it, so he has a lot of discomfort and pain especially when its cold and damp and you can virtually be certain it will be both, Jenny and my son have walked the streets handing out leaflets informing folk of their plans and my grand children also its not the first time Jen has raised money for the fight,, she did a zipwire from one side of the tyne bridge right across to Gateshead, if she decides to do something it gets done, so cmmon kind folks,, ITS FOR US AFTERALL, Dont dissapoint my little lassie it doesnt have to be hundreds though that would match my contribution, and no middle men it all goes to parky research every last sickspense, so dig deep fellow pdians, dig deep.
Kindest regards FED4
Hello my post answer to my daughters kind gesture I mistakenly typed in three or four of this thread, please read it thankyou
FED4
Who could refuse such a pretty one im putting a ton on the site so can we cough up whatever you can spare many thanks
FED4
Hello I have just started a bothersome two week trial in which I am supposed to drink 3litres of liquid, every day, now this is suprisingly hard to do, I have bladder trouble so have been told to drink a large quantity for me,, however I have the Duodopa system and im thinking the pd has worsened since this trial started bear in mind Ddopa delivers Levadopa right where its needed, my small intestine could the increase of fluid be flushing the Levadopa out of my system, any opinions welcome.
FED4
HiFEDEXLIKE4
good morning. Sorry to hear that you are under the weather at the moment.
i agree with you about drinking so much fluid. If I do this I feel lIke it is so hard to walk around taking a great big bucket of water slurping around me.
Hope you are feeling better soon.
Casie
not sure if this will be of help to any of you - my wife went on the Duo Dopa treatment earlier this year after managing PD with oral medication for 18 years - she has found the treatment to be a great help making a difference to getting about and carry out some tasks around the house - initially (after the day pump was removed) nighttime became a problem for us both despite taking Half Sinemet the tremours returned she switched off completely making any visits to the bathroom difficult - her Duo Dopa Nurse suggested going on the Duo Dopa treatment for 24hrs. which she has done changing to a different pump at night as the setting are different to the Day Pump - this has worked out well - please dont hesitate to ask if you have any queries we will try and help
Just to be sure, has any one contributed to the money eater thing my daughter , all you hav to do is click on the blue script tell it that you ere giving a £1 or £3 or £5 or £8.55p or £10 or £12 or £22 or £32, or whatever you can spare come on guys, my lovely kind big hearted youngest child,born 9 2 74 so this 43 yr old Young Lady has walked miles asking folks to contribute she is so determined that a a substantial sum will be raised she was in the local precinct shopping centre and had been there some time and rather like Casie and Golden Girl ,by the way GG I think your user name matches your personality perfectly I have been reading youur posts from way back and ddespie the most Horrible of evil nasty Horrorabilist wicked cruel nasty wickedness that you have had to wade through you are always posting sensible but great to read forcefull arguments about GT ,DP,AND THE LEADER of that evil trio yes must not leave out BAS???Do PD BLACKHEART the cause of all my and yours and all who on this Exellent Forum YES PARKINSONS, sorry well I like good rant as well you know, the main rant on this post is te lack of enthhusiasm for my Lovely Daughter Jennifers attempt to generate few £2000, QUIDS well we dont xpect to raise that amout I am giving her £1oo when she calls after a trip to the vetinaryrryvetenharry, to get her two little powerhouses of energy teddy and betty there antihorribbledog disases or ven diseases, J*78
ABS and I am going to have to tell her that no one seems interested in contributing so come on you fantastic folks oh and dont forget her husband PETER and his mate Nick who are BIKING PEDAL CYCLOMBIELS F THE TOUGH HEAVY DUTY TYPE from WHITEHAVEN Cumberland to TYNEMOUTH Northumberland, or Tyne andWear if you prefer they have pedallled hundrespdsosllly of many mileovilably losingly muchoweighto duringly pracisamo fortheventure, , I tell you these guys are trying very hard lets show the some support it does not have to be bank busting think of those massivehearted blokes battling there way across england FOR US
FOR US JENNY JUMPED OFF THE TYNE BRIDGE ON A ZIP WIRE AND BELIEVE ME I WOULD NOT HAAVE DONE THAT FOR
£1O 00000000000000000000000000000000000000000000000000000UID
FED4
41/2 YRS since Ddopa was fitted and it was a sure fire hitted (I KNOW but it rhymes) I had my doubts but a few hard clouts and after a few tests FED4 was kitted ( out) with the device which at first werent nice but necessity is the mother of Ddopa and I just had to cope a , and now I am used so if Im excused Im going for a tooth out just to add a little extra, well no gain without pain, not if I can escape and be home again. that is.
What do you think of that Lady J
FED4
Well I had to have a tooth extracted yesterday now the only thing I hate more than and fear more than the dentist is well another dentist or should I say I used to feel that way until the last year now im not feart at all the reason is the monster that haunts me day and night BLACKHEART and the pain in my spine is pushing me ever closer to the terrible depression the comes free when battered day after day no let up no respite also the incompetance of gp surgeries and hospital reception means I have yet another form to fill in to get me back into the long wait for release from the pain, which started last june, my god if these people could experience the hellish combination I have to carry, we have to carry they would take more care with the paperwork, I know Im not a special case and deserve no concessions when having any form of illness but when I read on this forum of good people being denied the care they desperately need, it makes me so angry after all not everyone is computer literate not everyone has a PC , and I need help this pain is the worse by far I have ever endured, it feels like bone on bone
Heh Hoh on we go FED4
I was attending N T G H yesterday and was seen by a most senior member of the Anti Parky Army Prof @@@@@, and a new nurse specialist plus 1 student, after some conversation especially the horrifying back pain now my thigh muscles appear to be trying to pull themselves away from their mountings every movement is undiluted horrifying pain so I endured that visit and as things were winding down I was told the sad very bad news "no more funding for Duodopa , those of us who have it will keep it but anyone not already accepted will not receive this excellent peace of kit, now thats from one of the best teams in the uk, but I dont think it will stop there those of us already using the system will more than likely be asked to pay half the costs or more so once again the poor will have to lose out, the wealthy wont, I dont know how they expect folks who are on the bread line to pay thousands in order to keep their Dds, to eat and heat plus all the cassets at least 2pday,I am going to try and find more info on this terrible news, apparently the makers have increased the per unit price
FED4
Hello
I am dissapointed that no one has brought a smile to my lovely daughters face,surely even is these days of austerity (for some) theres a loose fiver in your pocket it would make her day and mine if I could say ,,so and so from the Forum has contributed and she would be so so pleased n,,mind you it wont be a first for Jenny ,husband Peter bought her a 2nd hand rocket ship with the plan of making the great land of the Geordies GEORDIELAND one of the leading leaders leading the space race it cost a bit £27.63p she was OVER THE MOON with it we posted flyers opened web sites robbed banks and post offices but £122.34p WERENT PLENTY
yes yes did you get it ,SHE WAS OVER THE MOON ahh haa, WE WERE GOING TO BUY A PUB UP THERE WTH GREAT VIEWS OF EARTH BUT IT JUST HAD NO ATMOSPHERE, HA HAAAAHH HA
Have you finished hi-jacking this thread FX? If you want people to donate to your daughters fund bank, do it on a stand alone thread. Pestering folk won't help either!
As someone that has been receiving Duodopa for 4-5 years, you could be contributing more advice on the thread subject matter than herding fellow Parkies on a guilt trip for not donating money!
I personally pay into several charities (nothing like on the scale that you endorse) and I don't need to feel pressured into paying more that I can afford.
By the way, expressing gossip that Duodopa funding has stopped is rather scare mongering. It may well have stopped in your tyneside care trust but it doesn't necessarily mean that its stopped in other areas. Come to think of it, why are you so privy to NHS funding? Are you on the National Board?
I have to say I agree, Pokermid.
My son runs a half-marathon every year to raise money for Parkinsons but I wouldn't ask PWP or their carers on here to sponsor him. Most of them contribute in other ways.
His family and friends do that.
But hats off to the girls for their efforts!
GG
Well its obious that you have not taken the post posted re- the coast to coast cycle ride in the manner it is meant to be received Mr Pokermid most if not all my contributions to the forum have a element of humour of one kind or another of course people do not have to support the two guys if they do not wish to do so that is their prerogative and I am pleased you contribute to charities of your choice, and they will be delighted in turn to receive your much valued donations however I am 1 or 2 possibly 3 charity supporter the main recipient is Parkinsons for obvious reasons Children in need and the Local animal charity these are my chosen charities I hope you are not too shocked by my choices, also you are absolutely correct in your observations of my tendency to drift off thread it has again obviously annoyed you and GG well for that I apologise however I am absent minded and forgetful and I know I post in the wrong slot at regular intervals its simply I begin to type and dont stop in case the work vapourises which still occurs and that really annoys, other than that I am a placid easy going sort of guy ( often as a result of PD) though fighting the evil pig of a disease I will attempt all and every way to persuade folks to part with their monies if it annoys so be it ,SHY BAIRNS GET NOWT, meanwhile the plans are firmed up and I for one am proud of the Lads and what they are doing, so thank you for your critical evaluation I will attempt using max boost on Ddopa to mend my ways and regarding the "gossip" , well it comes from a very very reliable source indeed as my hearing is a bit duff I asked for confirmation with added anxiety as I thought it was withdrawing all of the support in total including existing members of the Dd club which of course would be impossible for me to continue leaving myself and others immobile as the device is mainly used when all other meds have been tried and found wanting, so for a while my heart sank, but no if you have it you keep it, make no mistake I am aware of the cost not only of fitting but also the casset supplies which are also expensive plus I have to wear mine through the night or I wake needing the loo,, and cannot move a muscle at first when I learned of the cost I was undecided if I should go ahead and carried a burden of some guilt for a while, until it was explained that the drugs combination I was taking was not far behind Dd costwise, I no longer need them, so there is some saving, I dont know why I am having to explain myself here unless you think I am making it up, the Tories are cutting cutting cutting away at NHS budgets and Benefits and for anyone to actually think I am making it up , well I cannot think of any reason to carry out such scare mongering its just beyond belief , I will now spend my time verifying this awful discovery and if wrong I will resign from the Forum immediately
FED4
Well after a little investigation ( which I should have done first), NHS England are continuing fund Duodopa, some areas of the UK are less impressed than others but no withdrawing funds is to be found apart from Scotland where one patient is losing his treatment , how can they do that ? so my appologies to all who will have been alarmed by my post a mistake that will not repeat in any shape or form as I regrettably now resign from this Forum.
Friends who have my email address may continue to contact me if they wish
Goodbye FEDexlike4
Hi FedEx,
How are yo doing today. I wouldn't like to be in your way when you are in a thunderous mood - oh no! I've a husband to who has honour.
Hope tomorrow brings you a better and sunny day.
By the way, I'v e been given an admission date again and I have a feeling this time it wIl happen"
all the best for now!,
Casie
Hi Fedexlike4,
I am really sorry that you have come to the decision to quit the forum and would like to ask you to reconsider. It's not the first time that there have been differences of opinion between forum members and everyone has ups and downs all the time. Some forum members might have been alarmed by what they thought was news about Duodopa funding, but if that is found to be incorrect it can be put right simply by finding and sharing the facts, as you have done.
It would be a shame for you to leave when you can still benefit from the support you get from other forum members, and to lose the support you do give other forum members. That is what the forum is there for, after all: to support all members on good and bad days.
I sincerely hope that you continue to use the forum.
Best wishes,
Mara
(Moderation team)
Hi Fedexlike4,
I also wish you would reconsider your decision to leave.I do enjoy reading your posts and I am sure there are also many others who would miss your postings.Please reconsider!!
Thank you,Anne29.