In response to Phil Reynolds (post 63)
As Phil suggested in his post of 4 Feb, I emailed Parkinson UK with the details of my 18 month running battle with the DVLA on the 5 February.
As no-one called me back after a week or so, I rang the Helpline explaining that, in line with Phil's posting I had sent an email outlining my probs with the DVLA to them and could I speak to the person dealing with the DVLA problems. The chap I spoke to said he didn't know anything about this and it must be a new campaign so I should speak to one of the campaign team. He said that he would find out who was dealing with my email and get them to ring me back. I told him that we always have our answerphone on as we have so many nuisance calls (mainly PPI) but if they left a message I would get back to them. He said that they can't do that without an instruction from the recipient - so I said to take my say-so as an instruction!
A week later, no one had attempted to contact me, so I again phoned the Helpline and, again, they didn't know anything about a DVLA campaign. So I asked them for Phil (Reynold's) tel no and rang him direct. I can't remember exactly what he said now, but he didn't seem to know what was going on with my case and said that someone would be in touch soon.
Well, I'd heard nothing this morning, so, after yet another wasted call to the DVLA, I rang the Helpline and asked to speak to whoever is dealing with the DVLA-problems campaign. Yet again, the chap I spoke to knew nothing of any DVLA related actions - he said that I should speak to my local Parkinson UK advisor and he gave me her tel no. I said that I am sure someone at Parkinson UK has my details and could he put me through to the relevant person - but he just insisted I call my local advisor.
So I did, and I sent her a copy of the emails I'd sent. She was very nice and tried to be helpful but she said that, until my neurologist sends the correct forms in, there was nothing she (or anyone else at Parkinson UK) could do or say to the DVLA to gee them up. Well, that's not what I understood from the tone of Phil's posting.
So, a complete waste of time!!
No-one has tried to get in touch (either by phone or email) from Parkinsons UK so, out of desperation, I am posting this to try to get some sort of response. So much for the clout that Parkinson UK have!!!