Hi sheila. I do walk alot . Im positive in mind . Have i got PD ? Answer is yes
Does it own me ? Answer is Hell no. Only the wife owns me. And im more scared of her lol. I will work round it and will adjust . its now apart of me and it isnt going away
Im a strong person but thats not to say there wont be the odd bad day along the way. Just another hurdle… but ive a supportive family and some friends who encourage me. Looking forward to going back to work eventually when i start my meds
But since joining this site and swapping messages and jokes. Ive felt better in myself as i know im not alone
Its like a private club . I can be who i am and dont have to pretend and not having to hide my condition. I made some great friends on here all ages with and without PD whom i may never meet but on here its like im sitting next to them
On nights i cant sleep i am swapping funnies at 2 - 3am in the morning with others
Have a good weekend and best to your family
Keith
Hi Keith - love your sense of humour it’s good to have a positive outlook. I too have the odd night (and getting a bit more frequent for my liking! Yawn! where I sit at the computer passing the time away either on the forum or playing cards.
I have had PD for eight years, diagnosed at the age of 57 and still plodding along!
Stay positive - Sheila
Thanks for replying Anne and sorry it has taken me so long to get back to you.
I am 59 and have had PD for 5 years and rheumatoid arthritis for 20 years my R A is all over my body.Yes like you I’m staggering around a lot more and believe it is my Parkinsons.
Hope you are doing ok. It i s really good to speak to you and I think we have spoken on the old forum.
Take Care Babs x x x
the 3 doctors ive seen say it is PD but i have to wait for full diagnoses , i showed symptons in november 2017 at first they thought i had a stroke but mri showed it wasnt then the shakey left han and stiff leg arm and a poxy stutter
ive been told i have 3 of the cardinal signs but will take another couple months till i get the results
i could win the lottery by then
i just want to go back to work but my boss wont let me because im not on meds and not covered under company insurance , doctors need to see my symptons unmasked
my days pass easier now ive found this site , someone at some stage during the day makes me laugh and me to them
but im good , in good spirits
even at 4.45 am
i dont sleep well , good job im not working but i so want to
message soon
take care
keith
Hi Keith
Hoping you get back to work soon x
Hi Babs and all,
I was diagnosed with PD six years ago. I’m eighty next month.
Sound of heart and mind but having increasing level of problems.
I have come close to falling over on numerous occasions, particularly recently as the disease has worsened but have always managed to cling on. At six ft one, and nearly 15 stone and two artificial knees I would be in trouble.
I like this site have chatted to some of you before. Can identify with your humour Keith. Humour helps fight PD, no doubt about it.
Babs - How did the wedding go last October?
I Miss TeeHee as well. I’m sure she’ll be back.
As an aside, They stopped me playing rugby last month (loose prop) because my walking frame got in the way… Hey HO
Jules77
HI Jules You are certainly doing well.
80 eh and still got a sense oh humour…
My son’s wedding was amazing just feels like a dream now.
Take Care Babs x x x
Hi Babs and all,
Forgot to mention I did fall over, last July. 12 stitches required. Fall was during the night, when I was in a rush.
My Physio emphasised that people with PD should effectively think every move, every step.
When I’m up to doing things I tend be trying to do them at a rush.
Also low blood pressure makes me giddy, particularly after bending down and getting up quickly.
Distonia and dyskinesia cause my legs to pull in at the knees and I can barely walk, this is another problem that causes near falls.
Regards,
Jules77
Hi Jules
Thanks Jules for letting us know what you are going through.
You are an inspiration so a big thanks to you . I read all your posts.x
Hi @Jules77,
Lovely to see you on the forum again.
I just wanted to intersect to let you know that we have a lot of information on falls on the Parkinson’s UK website that you may want to have a look at, here. I can see that you’ve already spoken to your physio, however there’s a lot of useful information on the kind of equipment, walking aids and footwear available to you as a way to educe risk of falling.
I hope you find this information helpful.
Best wishes,
Reah
Thanks for the info
Thank you Rheah for your input and my welcome back, have been on site useful.
Babs, that is such a lovely compliment you have posted above.x
Hi all
Have been to see my PD specialist this afternoon. I asked him specifically about falling. He made the following points.
Keep a check on blood pressure.
Postural Hypotension (a sudden change in movement) particularly associated with low BP causes dizziness and can cause you to lose your balance. Bending down and getting up suddenly a good example.
Sudden change in direction or twisting round suddenly without thinking should be avoided.
Avoid stepping sideways unless under controlled conditions.
Try to avoid shuffling on your toes as you move forward from stationary, if you suffer from akynesia (freezing)
Hope this is helpful,
Jules77
hi everyone ,this is keiths wife kay i want to say thankyou
the many people keith has chatted with has made the worse parts of him go away, and can forget
to him its like having a big knees up on line
im so gratefull and humble you have made such a diffrence he may never meet anyone face to face but i know someone will be here to tell him to shut up and tell him to stay strong
he has let me read most of the messages he has been sent and i cant believe the humour and the way you can take the micky out of yourselves ( by that i mean no disrepect )
keith has lost a few friends which i know has hurt him more than he will let on ,
he is strong and we support him in every way , i work and so does his youngest son , if he has had or having a bad day he leaves a red card by the micro wave in the kitchen
but we see it less and less
our boys hate what they see but not him , i suppose all of you have gone through this ,
hes getting some of himself back but he knows he wont be the same but we love him all the same
going to go now , before he stops me posting this to you all
i am so gratefull to each and everyone , and so i will sign off as keith does
take care
god bless
kay
xxx
That was so nice of you Kay.
Hopefully hubby gets on fine.its hard but you need to enjoy the rest of your life.
Babs x
Hi Jules
Yes as you say I would agree as I was also told to always move slowly when getting up or changing position.
Hope this finds you doing ok you always sound so upbeat.
Babs x
Hi Keith and Wife,
You sound like a real fighter to me. PD is a bloody awful disease but since being on this Forum it has made a great difference to my psyche. Like you I try to retain a sense of humour but sometimes I get down in the dumps.
Our offspring handle these things very differently from each other, because they are unique individuals. My two daughters are a good example one pretends it’s not happening but my granddaughters (all in their 20s) are just wonderful.
The red card system sounds a good scheme. Maybe a yellow one as well for half good. I received one or two red cards in my rugger days as mild and gentle loose prop? Can’t even play bowls anymore.
There are some good poems and writings about PD, amongst other things, under each month, Feb and March especially. Creative Corner is where you will find them. My personal approach is to use humour and pathos to help me and hopefully others. There is no obligation to contribute. Many just pick and choose and read.
Good luck and stay on board.
Jules77
Hi Keith, tell your wife Kay thank you for her kind words, she sounds a lovely person and is very caring of you. PD is not an easy thing to live with, it is as harrowing experience for the person with it as it is for the person who is caring for you. Worse case being the PD coming between couples in a big way, I feel I must tell you this because don’t fall foul to this happening in your life. If either of you feel despair in any way and at anytime, please talk to any one on the forum and we’ll be here.
Take care, you are a lovely couple - Sheila x
hi a bit late on tonight , my wife isnt easy to strangle bloody PD
hope all are well,
thank you sheila your words sound loud and clear theres nothing that will come between us ,
kay has never shown how worried she is , but unknown to her ive heard her with my 2 boys , but out of respect ive never said anything, , should i ? or should i let them have that to themselves ?
i love them so much so im determined to be more than this ,
im trying a bit of humour how is it ?
but seriously, this has made us stronger as a couple and super strong as a family,
and i hope others who read this know that life is precious but nothing is impossible just takes a little longer
i didnt really strangle kay, shes a great cook and shes sitting next to me with a cuppa she just made
take care
god bless
keith , and kay
hi jules77
we cant play bowls but you have to admit no one can play twister better than us
we suck at musical statues and crap at miming
take care be happy
take care
god bless
keith
Hi Keith and Kay,
Desperately sorry I missed your first name out in my earlier posting Kay.
Just a typo, I don’t know what happened?
Thanks.
Julian