I have recently been diagnosed with Parkinson’s.
My story so far.
66 years old and up until a few years ago, reasonably healthy.
I have been a lifetime sufferer of Asthma and a few years ago developed AF.
About 12 months ago I noticed a tremor in my left hand. Not too bad and only occasionally. I put it down to side effects of medication. A lifetime of steroids for Asthma catching up with me. Shortly after that, I changed most of my existing medications but the tremor only got worse. Now it is the whole arm and much more often.
6 months ago I discussed it with my GP and he diagnosed Essential Tremor and referred me to a Neurologist to confirm. The first neurologist I tried had a 9 month waiting list but I found one with 5 months wait. It did mean a 700km round trip to see her. The other neurologist would only be a 350km round trip.
The neurologist diagnosed Parkinson’s and when she told me why, I tend to agree.
The tremor is less when the arm is being used.
I don’t swing the arms much when walking. Normally, I have a dog on a lead or carrying groceries etc so no one noticed.
My face is expressionless. My wife doesn’t think so but she has asked me if I am OK a few times lately due to my demeanor so I think there could be something in it.
With hindsight, my left arm is slow to respond when holding a fork at mealtimes.
I have a MRI scheduled for 2 weeks time. Fortunately, that can be done at the local hospital.
The next step will probably be trying some PD meds to see if they work
We don’t seem to have a Parkinson’s forum based in Australia so here is the next best place to hangout.
There is a support group that meets monthly not too far away so I won’t be alone.