I have just braved coming to the Parkinson's UK site having been informed I show signs of very early stages of Parkinson Syndrome by my neurology doctor in March this year.
So my story is.....after having breast cancer diagnosed and treated 2 years ago this month at 68 I celebrated reaching a young 70 yr old last September to find myself back to outpatients once more....
I was referred by my GP to neurology last June 2016 and finally got an appointment in Nov 2016. After looking at my very painful, tingling stiff hands she sent me for a MRI cervical neck scan and nerve conduction tests whish I had in Dec 2016. During this first meeting she asked me to do further body tests which included walking up and down a hospital corridor and tapping my hands on my knees and the same with my heels. I had already mentioned neck pain and dropped shoulder on my L side and rigidity in my left ankle which on tapping hands and heels I realised my L side was much slower than my R side and she confirmed she thought I had a weakness in my L side!
I returned to see her 4 mths later in March where the tests confirmed bilateral severe Carpal tunnel syndrome and also she informed me I had the start of dupuytren's contracture and trigger finger in 2 fingers too!. She then did the walking and tapping tests again and also looked closely at my L hand at rest which I then noticed a very slight tremor myself!! She then informed me I had signs of bradykinesia in my L leg and then PS was mentioned and I was referred me for another MRI of my brain and a DaTscan too. These I have had and my next appointment will be the end of July for the results and to find out what's next. She assured me that there would be no medication for a long time and that I wouldn't die of PD either!! (which I knew!)
To be honest the first 3 weeks I was traumatised, shocked, angry and mourned my unknown future since we have several friends with advanced stages of PD! My blackest moments were the long nights awake. I read all I could on Parkinson online and the to things I resolved was to excercise and live for today, so until July when I will know what next,
I hope this wasn't too long but it is my introduction!