Sorry I havent been around for awhile but have decided to write a book or should I say an autobiography of sorts. I have been promising myself I would do this when I retired, but that is now 13 years ago and not a page written until 3 months ago. Since the end of February I have written over 12000 words am now four years old. A little bit of poetic licence has been introduced but it has to be interesting, and hopefully not that far from the truth. I hope to write to the age of 17 years when things took a dramatic turn for me for the better, although it may not have seen that way at the time. I believe the average book is 40000 to 45000 words. What I will do with it, I am unsure but would welcome any advice anybody could give me.
Apart from that I went to see the film called ?Simply Alice. A good story about an inherited form of Alzheimers called I think Picks Disease, it affects younger people BUT dont go if you are even a little bit down. Like Schindlers List you go out of the cinema feeling worse than when you went in.
However on the up eclipses, aurora orabolis? and a bit of sun - the world is a magical place at the moment.
Hi Everyone.....I just wanted to update you on Mr Dollys progress.....as you know he had the Acoustic neuroma Brain tumor removed last Sept followed by another op to insert a shunt to drain the Hydrocephalus. He was a very sick man and as well as incontinence, memory loss, loss of balance (many falls) mood swings and a complete change of personality, distant and away with the fairies most of the time, the one thing that he has always loved and could not do any more was to dance. In fact when asked by the Consultant if he had any questions he just asked him "will i ever dance again"? well bless his heart yesterday his dream came true and he returned to our line dance class with me........he was greeted like the hero he is, i was and am so very proud of him, his sheer determination and the skill of the surgeons have got him through the worst year possible.
To thank all our wonderful friends and family who kindly gave up their time and made sure that i got to visit my man in hospital over 20 miles away every day during his stay both in Sept and Nov we organised a medical themed fancy dress party for last Saturday. It was amazing everyone made the effort to dress up and i spent the last 2 months planning the decor, games and food to all have a medical theme. 27 pals were here and the afternoon/ evening also included Karaoke and line dancing. Which is when Mr Dolly showed us that he was ready to get back to Boogying again!! Next week we are going away for a few days before he starts his radiotherapy for Prostate Cancer (that is another story) and he is determined that he and i will be back to enjoying our sequence, Ballroom, Latin and line again. I cannot wait, how we have both missed it, but finally he will have his wish and for that i am truly grateful, to everyone who has supported us and helped make his dream come true.
Dolly, what wonderful news! You are BOTH heroic! To have come through such a long, dreadful ordeal is amazing. I have the greatest respect for your strength and your keeping hope alive. I wish Mr. Dolly the best of fortune in fighting prostate cancer now. It is usually responsive to treatment, so your hopes should remain high. My father-in-law, for example, is an 18-year survivor.
Thank you so much J for your very kind words, it is also wonderful to hear that your Father in law is doing so well 18 years is fantastic isn't it? Nowadays the treatment is so advanced thank goodness as i lost my dear Dad to the disease in 1998, but that was through misdiagnosis sadly, he was repeatedly told that he just has an infection and by which time he managed to see a Consultant it was too late. Strangely Mr Dollys would not have been spotted so soon if it had not been for the bladder incontinence, and by visiting the GP found the Cancer, though the incontinence was actually being caused by the Brain tumor and Hydrocephalus. That is fate i guess!
Yes we remain positive and enjoy each day, these things certainly put life into perspective and make you appreciate what is important.
Hi everyone......hoping that you are keeping as well as poss and to let you know that i finally heard from the DVLA and after 2 eye tests and an eye operation i have my licence renewed for another 3 years yay!!!!!!It will be wonderful after not driving for the last 2 years to be able to take Mr Dolly out somewhere that we cannot reach easily by bus. We are very fortunate with our local busses that run every 10 minutes but now that my dear fella is unable to drive at least not for the time being due to the Shunt in his Brain ( it has to have been in place for 6 months without any problems) i am so chuffed that i can take him out, also the 3 hour round trip to my lovely old Mum on 2 busses will mean that i can spend longer with her.
Also today i went to pick up my prescription for Requip XL a slow release medication that i take at night, only to be told that the 2mgs are not available until at least June although the 8mgs were. I take 10mgsand the Pharmacist was amazing and rang around various chemists on my behalf and her assistant even drove over to the next town to pick some up and when she arrived they were not the correct ones. I contacted my Parky Nurse who was so helpful and suggested an alternative brand also if there is going to be a problem acquiring the Requip XL in the future then she has suggested another slow release pill for nightime. What a team they are, i am so glad they are so supportive and lucky to always have one of our three Parky nurses always at the end of the phone.
Well next week Mr Dolly, myself and some pals are off for a few days to enjoy a short break, only 28 miles away but it is fantastic and reasonable, great food, quizzes, loads of dancing and wonderful friendly folk. It does us good and especially this time as when we return Mr D will be starting his Radiotherapy for the Prostate Cancer, and so for a month or so we will be at the Hospital every day.
I hope you all enjoy your Easter break.........don't forget to eat as many eggs as you can!!!!!!! mmmmmmmmmmmmm lovely jubbly.......looking forward to hearing your news
Not been on as getting ready for new kitchen, help me reach better. Also opened up caravan for the season. Meet friends and sister in law too. Go on scooter, one steep slope, fun! Pleased hubby can dance again. My dream is to get in swimming pool again. Need help to get from changing room, last time I nearly fell. People leapt out the water to help! Sister in laws partner just finished radiotherapy for prostate cancer, seems fine.
astoriasis good luck with book, we are all creative! I wrote 4 poems over easter!
Dolly, pleased your party went well, knew it would, sounds fun. My new u step walker is great
Sunny here , I hate the heat, sticky here in flat fens, worse with parky ! Mum loves the heat, hotter the better !
Dolly , enjoy your break. Hope all had a good easter as we did. I am odd , don't like chocolate ! Am lactose milk intolerant too! Strange person!
So pleased you can drive again! I miss driving and popping out . Would need steering wheel adaptations, can't drive with feet.
We have been helping 91 yr old neighbour while daughter in Spain . Also taxi mum to help her friend or partner who broke his hip. .comes out of hospital today.
Hi Brenda and all.....Yes it is scary if you are scared of being enclosed in a small space, i am the same, and the first time i had an MRI it felt like hours in there instead of 15 minutes, but the next time and the next was much easier as i knew what to expect. The anticipation is always the worst isn't it? Pleased to hear you are getting your caravan ready, i hope it will be a lovely summer for you matey and you can relax and enjoy it. I love the hot weather just like your Mum, and Mr Dolly always has but now having his HOT flushes due to the Hormone jabs he is finding it a little more uncomfortable than usual. He starts his radiotherapy on the 26th May for a month and thankfully i finally got a lovely little Citreon C1 automatic car and will be able to drive him to his appointments. I had not been behind the wheel for almost 3 years and i must say it has been wonderful to get back to it. It is less than a 1,000 engine, only £20 road tax and it is white and resembles a snowball!!!! so that is its name my little "SNOWBALL" the boot is so small that i cannot get much shopping in so Mr D is delighted haha!
I will send a pic to you on the e-mail, and we can catch up
Meanwhile as always keeeeeeeeeeeeeeeeeep smiling everyone.......better than the alternative ay?
I never cease to be amazed by your ability not only to stand toe to toe with BLACKHEART and not give quarter,but at the same time shepherd Mr Dolly through his very own minefield, I salute both of you a nd apologise for not updating you on my progress, the fact is Lady Dolly parky is even by his vicious evilwiickedpittiless standards is battering my defences and as I grow weaker by the hour (no exaggeration no silly remarks) parky brings in the heavy armour DEPESSION or DEPRESSION if you would prefer,and now the latest and most destructive of PDs weaponry,, PARANOIA ,yes Dolly this one is really wrecking me, I know everyone who has read my posts to this great Forum will have a pretty good idea of the man behind the FEDEXLIKE well my friends I need to let you know, not only whats going on inside my head but, my actions outside my head, and I would like to hear from anyone who reads this,OH MUSTT GOPT2
Sorry about that BLACKHEART was reading my post, my appeal to all my old friends and new of course I NEED advice I feel only the width of a human hair which ranges from 2 thou to 6 thou, or on average 0.004 of a inch, away from oblivion, 0.004 is as close as it gets ,as I sit here typing this the sheer effort of remembering how to spell, think compose has me soaked in perspiration, I even sent a very unpleasant post to one of y wife ex boyfriends, we met in the cafe in the village 6 weeks since I had never met him and he was a very nice guy but he would not look me in the eye when I wanted to ask him,,well converse, I am always suspicous f any guy who will not hold eye contact,he was gazing into my wifes eyes but not mine,he is single and invited us he almost forgot me, he invited us to his home in Tynemouth ,,the posh end obviously and as he was leaving he kissed my wife (on the lips), and held out his hand I took it but only to crush it in a very strong grip, its the only part of me that works to spec, my wife scolded me but I had already made up my mind, I wont go into details but one e mail later I have ensured there will be no visit.
MY LAST POST TO THIS FORUM HAS VAPOURISED, IT WAS AS PER, THOUGHTFUL AAND INFFOORMATIVE BASICLY ITS THIS, II POATED MY FEARS OF IMPENNDING DDEMETIIA TO EVERTY ONE, IM CURIOUS IF ANY ONE ALESE HHAS THHESE FEEARD ONL CC ANDGUS REPLIED , I THOUGHHT VERY CCAREFULYY BBEFOE OSSTING AS I DO NOT WANT TO CAUSE ANXE AMONNGG YOU MY FRIENDS, BUT POST I DID, RESULT 0 ZIILCHH NOWTATALL, APART FROM CC GUS AND THE NEWLY RETURNED SUZY,( OH I WISH I WAS 30YRS YOUNGER SUZY) IF YOU LOVE ITALY I WOULD DELIHT INGIVING YYOU A GUIDED TOUR MY BEAUTIFFUL YOUNG FRIEND,, thats friend not fiennd as my palopt insists on calling you,, I just ignore thw damm ing JEALOUS SUZY VERY JEALOUUS.
ANY WAY ITS MATTERLESS AS I WILL ONLY PST HERE IF MY INPUT IS LESS THAN 5 OR6 WORDS IM SICK F OF MY WORK DISSAPEARING SO IT FACEBBOOK FOR ME, MY DETAILS I WILL LEAVE SO IN THE UNLLIKELY EVENT OF SOMEONE WANTING TO CONTACY ME YOU CN EE MAIL ME,, KINDEST REGARDS TO YOU ALL, YOUR SERVANT ET AL.
I read your post and I did want to reply but I reverted to my type and couldn't face being honest, choosing to focus on the positive things in my life instead and very selfishly ignoring how you were feeling, I am so sorry.
My biggest fear is dementia. My Grandmother suffered pre senile dementia and it was an horrific nightmare.
There are medications that I understand help with dementia, and I see lots of media raising awareness. I can't engage with it as my fear is so great.
There is no gain to be fearful tho and I hope that if I or my family notice the early signs then I will seek every available support to me.
I am trying to learn to live in the moment, as I have suffered from anxiety for many years, spoiling the present with fears for the future. I refuse to do that anymore and I am concentrating on the gifts that each day brings.
I hope that you conquer your fears and god forbid if the signs are there, ask for help, as ti is out there.
I know that posts disappearing is really frustrating. As I've said before, I would highly recommend that you write your posts in a saved word document on your computer and then post the text into a comment box - If the document is saved on your computer then you will have your text saved in case it accidentally disappears when you post it.
I realised ages ago that if you try to correct spelling or punctuation in a post, it disappears...never happens in any other forum.
It is such a faff when having read a post and wanting to reply , to find a word document, type and copy and paste, unable to look back at the post to remind oneself of the details.....
The unanswered question is why this forum is afflicted with this fault?
It would be nice to know and to even better to read that the problem has been solved.
When you're writing in a text comment box if you hit the backspace button on your keyboard (i.e. because you’re going to edit your text) while your cursor happens to be outside of the comment box (i.e. the comment box is not 'selected'), the backspace button functions just like if you hit the internet browser ‘back’ button at the top of your page, and the window you're in will be brought back to the last page you visited.
This is a feature of the internet and will happen with any web page you are, on where if you hit the backspace button on your keyboard the browser window will go back to the previous page. Unfortunately it’s not something we can change.
thanks dolly, for snowball photo, looks great ! So pleased you are driving again.
did reply on e mail. We are changing our car under motability for wheelchair accessible , need to apply before august when I am 65. Easier for peter , ramp for scooter and wheelchair . Just had hobble in garden with walker . .
re Mr dolly, peters sister Susan's partner alan had same treatment , gets hot flushes .
had another fall, hit radiator , bit hard, big teeth saved me ! Bit shaken but no breaks , so lucky. Mums twin sister , 88., just had a stroke, only in hosoital 3 days . We enjoyed caravan week.
Hiya my mate Fed.....so sorry i have not been on here for a while and am more sad to hear that you are feeling so poorly and low. I wish there was something i could do to cheer you but depression is not something you can just be jollied out of ...i know i suffererd it myself years ago as did my Mum and it is the pits. I am just pleased that you can chat on here and have good support from the many people who understand what you are going through.
Well i can think of something that should give you a little giggle matey.... last Friday we decided that our very ancient shed had to come down as it was in a dangerous state. mr Dolly took out the remaining bits of glass and as he was out the front putting it into the skip i decided that i would take this thing down my myself......i rocked it and shoved it, pushed it and with some amazing adrenaline rush ...it collapsed......it sounded like the local cat on acid!!!! what a great feeling, though when Mr Dolly heard it he assumed i was under it!!! never underestimate a woman with Parkinsons when she makes up her mind to do something haha!!!!!
Later on as we were breaking up the wood by kicking it and jumping on it i realised that i should have put on a decent soled shoe..........although the hard hat, goggles and gloves were in place i hadn't thought about my feet!! and yep i felt the nail enter the shoe and my flippin foot!!! ( i think i am covered by the tetanus jab) !!!!!!!!1 anyway i hobbled into the garage, filled the sink with very hot water stuck the foot into it with neat disenfectant poured over it and gave it a good scrub with a nail brush (kill or cure) followed by Savlon and a dressing and a thick soled pair of boots. After 3 hours the job was done yay!!! well chuffed. We were both so knackered and stiff the next day that we realised we are not quite as young and fit as we once were ay?
Now all we have to do when it arrives is to put up the new one!!!!!!!!! i may ask for some help!
Don't forget to email me if you want to chat ok?
Keeeeeeeeeeeeeeeeep your chins up Fed...look forward to hearing from you sometime matey
well my friends I need to let you know, not only whats going on inside my head but, my actions outside my head, and I would like to hear from anyone who reads this,OH MUSTT GOPT2