Hi how are you today?

About Parkinson's and health Wellbeing
161

Hi Hatty,

Most of the time I spend posting silly or amusing comments. I do however read serious comments and reply if I have anything useful to say.

I am on the same side of the fence as your partner. I get ratty for very minor things when I'm stressed.

I take co-beneldopa slow release at night. I find it helps.

I talk one to one with my friend BA who is in the forum. This also helps.

My wife has my full support in throwing wobblies on me when I get stressed. This also helps to get things in perspective.

I find the frustration builds as various small jobs become increasingly difficult.

What we need to do is let go of the past and live as we are now and learn to accept help. I also insist my wife goes out with her friends alone so she can relax.

Laughter breaks the mood and my wife makes me laugh. I try to be as open as I can on how I feel without constantly moaning.

As BA will tell you..........one day at a time.

Have a heart to heart. Use all the back up systems available. Put your hands on your hips and scream if it helps.

One thing which is very detrimental is keeping it all in. There are some very skilled people available to help.

Most of all Hatty try to turn off as I call it. You can't live 24x7 under pressure, you'll crack.

My wife just came in while I was writing this. I asked........do you love me.......she replied........no your a bad tempered old *******. She then came over and kissed me and wandered off saying........someone has to.

This makes me laugh. Arguments last ten seconds. I struggle with words so I use profanities to get it out of me. We never let an argument linger.

I'm not sure if any of this helps..........but you are not alone.

Morph xxx

 

 

 

 

 

 

 

 

 

 

162

Thank Morph.  And I do agree with all you say above.  I`m better today and I looked back at some of the jokes and loved the one about post tortoises.  Life`s never all bad is it?

Love

Hattie

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Hi Hatknitter....I am pleased to hear that you are feeling brighter today.....we keep going don't we? but sometimes it just hits you like a bolt from the blue. I do understand how you have been feeling. I have coped the past year with my darlin Husband gradually becoming more incontinent, memory loss, falling over, mood swings and generally away with the fairies! but i am the one with Parky!!! he was finally diagnosed with a large Brain tumor of which he had surgery, though he collapsed a couple of months later and had another Brian op to fit a shunt as he was suffering with hydrocephallus. He has since been diagnosed with Prostate cancer and is undergoing Hormone treatment and starts Radiotherapy soon. I am amazed at his strength and positivity, i never dreamt he could cope with so much. I am not driving (DVLA)!!! and had to rely on kind friends to get me to the Hospital to visit my man every day over 25 miles away. It was not easy for any of us and people wondered how i was so strong and organised. Less than 2 weeks ago i had to have eye surgery and the day after i cried and the next day and the next!! i am generally very positive and am a better carer than a patient!! but it all came to a head and i felt vulnerable, my dear Husband was now looking after me! i realised that i had kept everything bottled up for so long......so i would say, have a good weep if that is how you feel, chat to friends, get your feelings out there......it will pass honestly. Meanwhile like i always say.......keeeeeeeeeeeeep smiling matey. You are stronger than you thinkbig grin

luv Dolly xx

164

Morning Dolly

Thank you for your kind words.  Today is already better.  OH has opened his eyes and taken some water through a syringe and managed his Parky pills.  Yesterday he didn`t manage any pills except the antibiotics crushed in jam and even that was so slow.

I often borrow strength from the posts from so many of you coping with tougher lives than mine.  The sympathy and jokes really help.  And it is happy making to hear the good news posts of people like yourself.  Great that Mr Dolly is doing well and your own op. is a success.

Love Hattie

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Rejoice with me  everyone.  OH is on the mend.  He wanted to stand up to have trousers pulled up.  Took 2 of us but they`re on.  He had a nightmare that was still with him when he woke up but I was able to reassure him and now he`s sleeping peacefully in his recliner.

I hope you all have a happy day today.

Love

Hattie

166

Hi all especially my young mate Dollymaz

Well I dont know about you but I will not be sorry to see the end of this winter and somehow I dont think we have long to go.  Took our sons dog for a walk and saw daffoidils. hyacinths, and primroses.  How lovely, and do you know what the aches and pains I had seemed to diminish.  Must have been the smell of the flowers or something. perhaps spring is in the air.

Sorry to hear about some of the problems you have been having but there has been a bit of positivity.

And really admire Dolly because she is having so much to cope with at once.

So bring us sunshine, all the while dodar dum etc.  Sorry can't sing

Best wishes

Assie 

 

 

167

Hi Hattie my mate Dolly and all you lovely people on this thread.

It is always good to hear what everybody has to say on this thread, I find most posts quite inspirational.  I am sorry Hattie that you were so low the other day but today things seem to be a bit better for you.  

I love reading your comments Dolly you are very inspirational.  I have been following you for a while now and no matter how hard things have become for you at the end you always bring a smile to my face - thank you.

By the way Dolly have you seen anything of Fedex on here lately I have not for a while i hope he is OK.

I agree with Asssie Spring is in the air.  My daffodils are coming up, the Tulips are about to bloom and the days are getting longer.  And yes the sun is shining at this moment.  Now all we need is a cure for Parky.!!!  .

Bye for now.

Wye

(Keep rocking Dolly)

 

 

 

 

 

 

 

 

 

 

 

168

What a lovely day, just right for making pancakes, tossing them in the air and letting them land on the wife's head.........saying........hows that for a hat?........Shades of Ken Dodd ?!

Meanwhile Valentines day provided much amusement. We were on the train and the ticket collector came round. We showed him our tickets, but the couple opposite were busy snogging each others face off. He let them be. So we presume it was a ploy to avoid paying the fare......or maybe not given the date.

Mrs Morph says we should try it. Knowing my luck I'd get fined for fare dodging and locked up for some strange bye law forbidding public displays of affection. I will stick to buying a ticket me thinks.

The rest of the day was spent in the company of chaotic friends. It's good to talk!

Mrs Morph walked into a wall. When I asked if she'd like it moving, she said it already was. Her theory was the wall moved into her, not vice versa.

She retires in two days time, then the fun will really start. I am wracking my brains trying to think of ways to entertain a 62 year old who thinks she is still 21. Maybe snogging on a train is worth the risk!

 

 

 

 

 

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Hi to my mates Astoriasis, Wye and young Morph..........Well Morph how to entertain a 62 year old who thinks she is 21.....as that also applies to me i will tell you!!!! ENJOY the fact that she has such a fab outlook on life good on ya gal. I have planned a medical themed party for next month as a way of thanking all the folk who were so kind in giving me lifts and supporting us when my man was so ill last year.....it will be a kids party and the youngest of our lot is 62 !! Brain jellys, pass the parcel, pin the plaster on the young mans heart ( copy of tail on the donkey), racing false teeth, jelly filled syringes, etc etc. I am going as call the midwife always at your CERVIX !!! and my name will be Penny Sillen!!! I have a baby doll with Mr Dollys face stuck on it and it is scary. Anyone who turns up not wearing something medical will have a panty liner placed on their head!! why?because when Mr D had his Brain surgery he had an enormous looking Sanitary towel stuck on the side of his head so.......they have been warned haha!! He is going to wear a very sexy nurses outfit, a red wig and white fish net tights...yep he is 74 and just as barmy as me.I reckon your wife has the right attitude Morph.......who wants to get old....not us ay?

Lovely to hear from my old mates Astoriasis and Rocker gal Wye.....my apologizes ladies for not getting back to you for a while.....i will, especially now i have had my eye op and finally can see much clearer, in fact after 20 odd years of a droopy lid i now look like Patrick moore!!! i had a test for the DVLA today and i am hoping that i have passed, the optician and my surgeon reckons i will be fine but you know how long it takes for them to make their decisions. As Mr D is not allowed to drive for the next 6 months at least due to the shunt being fitted, it would be so handy for me to get behind the wheel again......LOOK OUT!!!!

Yes it is wonderful to see all the spring flowers coming up and the birds seeking their nesting sites, we had a walk on Tuesday along the sea front and sat in the sun for a couple of hours, it was lovely, and actually got around to peeling off one of my 6 layers!! (cold mortal) Last year was dire but despite keeping the N.Health in business we must and do make sure we find time for fun, i reckon it is best to surround yourself with people that are of the same mind.....potty!!!!! 

No i haven't noticed our young Fed on the forum recently, we do sometimes e-mail and he has been having problems with his Parky, but bless him he manages to keep as positive as possible and always has a way of finding the funny side of things just like our lovely Morph.

It is great having you all to chat with.....but it is time for the eye drops, parky pills, BP pills, HRT patches, Thyroid meds, and a nice cuppa tea to wash it all down with.......so all keep smiling, and keeeeeeeeeeeeeep rockin ok ???????

lots of luv and hugs

Midwife Nurse Penny Sillen (aka Dolly) xxxxxxxxx

 

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All I can say is...........the older ladies get, the more fun they are.

Morph xxx

171

Hi dolly and all.not been on here recently.

dolly sorry to hear about your eye surgery , hope you are recovering. And hubby is coping. I recovered from my hsmstring fsll. Not walking well but still on lowest dose patches . See nurse this week.

sleeping better and eating ok. Some days frustrated when hubby has to do more but do what I can , can still Chat  as my friends say ha ha ! One friend says I am an overcomer. Hope to get a ustep walker from my physio to try, can't wait ! Better than pushing my wheelchair.

soon be spring and caravan season. 

Dolly I did send you an e mail think you were away christmas time ? 

Brenda xx

172

Morning Morph and all

Thank you for your new chapter of the never ending story.  I laughed out loud at it.

I needed a laugh this morning because OH has got pneumonia and today will decide whether he has to go to hospital for intravenous antibiotics.  Since he also has PD, is very deaf, has nightmares and is confused I want to keep him at home.   Well, whatever is best for him must be best for me too.  But I feel better for the laugh.

Thanks Morph

173

Anything to relieve the pressure is good.


I learned a long time ago the basics of psychology when dealing with EBD children. A very clever man taught me how to use humour, distraction and various other techniques to avoid unnecessary confrontations and create a pleasant environment.


I never imagined it would be something I would use on myself in my present condition. I transferred the techniques he taught me and try to distract myself accordingly. If it helps others along the way it is even more important than I at first thought.


My reward is in the laughter of others and others making me laugh, so it's quid quo pro.


I made a shaky start on here (no pun intended) and it was yet another learning curve in a very different environment.........the written word being very different from the spoken word.


J of Grey was brave enough to tell me politely where I was going wrong and was invaluable with her experience. This is how I learn.........not from books, but from others who have greater experience.


My sincerity is genuine though and not flippant like my humour.


I have read Dolly's accounts (not moans I hasten to add) of surmounting incredible odds and still remaining cheerful ( which must take some doing), talked in person to BA and witnessed the bravery of coping with PD and gained the strength to come to terms with my own problems, via the many posts that made me realise I am not alone and certainly not as badly off as I thought when diagnosed.


So when I tell you I wish you all the help and support you need with OH, I not only mean it, I hope for it.


I recently posted something along similar lines about the power of friendship and got support from J of Grey, my good friend BA and Sheffy. This proved to me I wasn't talking b****cks and that others on here have genuine empathy for each other ( not to be confused with sympathy).


So don't thank me Hattie, just keep inspiring me, like others do, and it will help me, as much as you. We know what you are going through.


Wish OH all the very best and ten out of ten to you coping with a very difficult situation, which I know others will appreciate from their own experiences.


The government once told us 'we're all in it together'. They were disingenuous and scoring points to cover up the mess they made when they said this.


We however, really are, in it together.


Morph xxx

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Hi hatknitter

Read Morph's 'thought for today' it's quite titillating and should bring a smile to your face as well. As Morph said we are all supporting you and hope your OH soon gets better.  

Keep your chin up  Sheffy x

175

Wonderful thoughts for today, Morph!  You say so well what many of us feel.

J

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Morph is an amazing fella........You are so right J he has a great way with words, and is so inspiring to us all. Morph should be Morphed !!!!!lol

love Dolly x

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Hi Brenda.....I am sorry i have not replied in ages, i really hope that all is well with you, i am pleased to hear that you are going to try  a Ustep, i saw one on you tube and they look incredible. I bought Mr Dolly a Rollator when he was first out of hospital and it made such a difference with his balance and gave him more confidence also. Now he is able to walk at quite a pace with just a stick and it is so wonderful to see. In fact for the first time in over a year he did a little practise of line dancing with me over the weekend indoors and is joining me for a line evening next week. He is very positive about life now and is so grateful to still be here! which without surgery was told he would not have survived very long. He starts his radiotherapy in May time but after what he has been through seems quite minor by comparison.  Yep the eye is still swollen and apparently the stitiches should dissolve in 6 weeks or so, i guess i am impatient and getting a bit cheesed off looking like Patrick Moore!!! but yay i can see ....at last and it is brilliant. I had an eye test for the DVLA last week but i guess i won;t hear for a couple of months? I will email some pics to you Brenda.....we are having a medical theme party next month and Mr D looks fab in his sexy nurses outfit, plus bright red wig. I am going as Call the Midwife and have a baby doll with a pic of Mr Dollys face stuck over it, quite a shock for anyone looking inside the shawl. It is going to be a lot of fun and that is what keeps us going ...fun, laughing and just not giving a  *^(5$*^!)&$"&^ about anything !!!! enjoy all we can whilst we can, don't you think???????

I bet you are looking forward to the Spring and getting back to your caravan? the spring bulbs are showing now and the evenings are getting lighter.....brilliant. As Mr D says "It is good to be alive" yep you are so right  matey.

Keeeeeeeeeep smiling Brenda 

love Dolly xxxxeek​(me)!!!!!!!

 

178

That's not quite the way Mrs Morph puts it Dolly. If she has her way I'd be stuffed and used for a hearth rug at times.

Today in the supermarket.........where I only wanted one item on our way home........not the whole store      (we did a big shop yesterday)......I was heading for the check out.

Mrs Morph was following a little behind (not mine, I have a big behind) and called out......look at this........my wallet whispered in my ear........don't stop, keep walking, which I did.

A lady with her husband near me said.......he does that.......pointing at her husband.

I replied........you'll have to speak up I'm deaf in one ear and can't hear int' t'other.

Mrs Morph had caught me up by this time and commented to the lady......he's not deaf, just ignorant.

I smiled sweetly and kept going. I escaped with just the one item. People in the car park stared at me as I did a lap of honour.

I have lost count of the number of times Mrs Morph has conned me. I suspect she lets me win one in a while to keep me interested and hopeful.

Morph xxx

179

Us gals all do that Morph....we go in for one item of shopping and come out with  a dozen bags!

Mr D says to me every time i just pop in for some milk or bread "i bet you come out with at least 6 items" ......well there are sooooooooo many bargains and i find them hard to resist, and they always come in useful!!..........don't they??????

Now Mr D really is deaf in one ear since his Brain ops, so i guess he does have an excuse to walk on by!!! .........

As we don't have a car now my mate took me to Morrisons and i thought it was my Birthday.......i was in there for 2 wonderful hours and had to get a lovely young lad to carry it all to her car for me as i would be in traction by now with the weight of it all!! 

I am just imagining you doing a lap of honour around the car park........brilliant, great exercise young Morph.........keep it up matey x

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Hi to Dollymaz and all.

Havent been on for awhile cos I've been busy thinking what I will do for my 70th.  Dropped all the hints about a surprise party could be good but it doesnt look as if it is going to materialise - so am off to the med.  will be in Barcelona on the day.  The last time I was there my bag was stolen.  They are professionals. I only put my bag down in order to put a tray on the table and it was gone.  Ruined the weekend.  But this time it will be fun.  My family couldnt understand why for once I wanted a party.  I've never had one, and the little girl inside me -  was sad.  But am having a family night out before we go, so that should be fun too.  And with only three  years to go for my 50th wedding anniversary there's plenty to look forward to.  Life aint so bad. Enjoy things when and how you can.

I never cease to admire our Dollymaz.  Only wish I could give her a hug.

I wonder to sometimes how others are----- really doing.

Its great hearing from you and I wish you all the best

Keep posting

Astoriasis xx