Hang on in there & wait for your scan results to see whats going on.all the best gus
All the best
hope you get the news you want
keep your chin,
Hi, colin-read-andrews ---
Waiting and not knowing are the hardest things to deal with. If you do get a diagnosis of Parkinson's disease, at least you will then be able to start getting treatment for those symptoms you have to endure at present. And PD is not the worst diagnosis by any means. For most of us, it is slow-moving and its symptoms can be counteracted with medication.
Best wishes to you!
welcome to the forum
good luck with your test results
i have tremors in my hands rigidity in my arms and bradykinesia i dont have electric shocks but i do have a problem with my leg all of a sudden my foot will go really rigid and like you say claw like i have no control over it at all
As far as i know a MRI will not actually diagnose parkinsons it is used more so to rule out other conditions msa , stroke etc my neurologists words were he would expect a normal mri scan with parkinsons
it can be a long process getting a diagnosis of parkinsons as there is no test for it your neurologist will go by symptoms and ruling out other possible causes although some neurologists can and do give a diagnosis of parkinsons fairly quickly i was given a parkinsonism diagnosis at my first neurologist appointment then a few weeks later we found out my mother also had Parkinsons so i was given a diagnosis of familial parkinsons
I hope you do not have to long to wait as the waiting and not knowing is as j of grey said the worst part
Good luck all the best
Parkinsons is very individual no two people will have the same symptoms , rate of progression etc thats what makes it so difficult to diagnose by doctors but i do hope the next few weeks pass quickly for you and you finally get some answers
Hi CRA, that must be really tough. It's hard enough sometimes to manage oneself without having to manage others, especially youngsters. And it's a vicious circle: your grandson gets scared for you, you get scared for your grandson. I know PUK does a series of booklets to help children understand about PD. Maybe worth having a look at http://www.parkinsons.org.uk/content/my-grandad-has-parkinsons-childrens-book just for yourself and your partner?
I'm sure others with grandkids will be able to help, too.
Take it easy
Hi CRA, I am so sorry to hear of your problems.
We talk to our 5 grandchildren about my husband's Parkinson (aged 2 to 14), and they all have little jobs to do if Grandad gets stuck! They can put a ruler down for him to step over, sing a marching song etc.
It's a bit of a game and takes the fear out of it.
Even the youngest accepts his brain has forgotten how to tell his legs what to do.
I can relate to the rude bit. It astonishes me that I can treat my OH badly, given what they have to put up with. Yes, mine too recognises it's the disease. Yes, I feel guilty too. Let me know what your PD nurse recommends.
And BTW, most PUK publications are free!