Morning babs, Tommy, Mrs. T and Keith all the best for today from mam and me hope all are well as I said Mrs welcome to a very special clan I hope including myself in this doesn’t make me seem smug I was always brought up to help and more importantly respect others and knowing what a cruel disease pd is we all need help at some point I have met many nice people on here but 3 very special people now it should be 4 might be a bit quiet today as mam, s friend of 70yrs and her son are coming this afternoon but will be here if I, m needed especially for you Keith regards to all
Pete and mam
Enjoy your day Peter. The same goes for Mam.
Will hear how your day goes later on.
Babs x
Hope you have recovered Tommy from doing your fireplace. So Tommy what’s the next job?
Take Care
Babs x
Hi Gang
Just a quick message before I go to see the men in the white coats
I WISH TO THANK YOU ALL
The support and FRIENDSHIP I have found can only be discribed as a blessing
YES , I AM SCARED
I’d be lying if I said I wasn’t
I am going by myself even though kay , Connor and Ryan offered to come with me
But I don’t want them to be on the recieving end of my bad temper which can be loud and very explosive
SO
TOMMY , BABS , PETER & MAM
ROY ,. CRIUSECONTROL. ,. MRS T
& REAH
THANK YOU ALL for your FRIENDSHIP
SUPPORT & PISS TAKING ( don’t edit )
my appointment is at 11am don’t know how long it takes but considering how long I’ve waited must take along time
But when I know YOU WILL KNOW
BIG RESPECTS TO YOU ALL
KEITH
I may not reply till after
I’m not ignoring any of my friends
Morning Babswood , Peter and Mam of course ( have a great day) Lesley , Roy and Kieth
Peter the panic is over Kieth took sleeping sweeties which is why he was so quiet last night ( for a change) .
Seriously though I’ve told him by text that whatever the outcome .
We are all still here as his family is also is so in that context at least the forum and his family won’t change.
We all know diagnosis day can be devastating but at the same time we still want to know.
Tommy 
1 Like
Morning Babswood
The next job is decorating the bathroom but it involves taking down a lot of fittings including a large lighted mirror so I’ll have to wait until I get my motivation together .
I got the decorators in January and the only room I didn’t have done was the WASHROOM
TOMMY TROUBLE
Hi Peter and Mam
Kieth just called he said he has arrived at the hospital .
So I told him now it’s your turn to go over the top.
But don’t worry we will be right behind you in single file of course we’re not that crazy.
Regards to Mam
Tommy
thoughts with Keith. That awful waiting when you think that you have control over every scenario…
It is so much better to know: good or bad.
In fact K. is allowed to react in whatever way he chooses, no edit.
Sometimes we have to allow ourselves it ALL.
Babs, hope you have had a great day.
In fact let’s all have a group HUG.
Very brave yet understandable to go solo to hospital.
Good luck.
Hi Lesley
Kieth is going to need that virtual hug today as he is as angry and bewildered by the non decisive neurologist.
Tommy
Hi Gang
Well after waiting 7 months 3 weeks and 5 days ALL i got today was I DONT KNOW
Im showing some signs of PD but she could not detect bradykinesia, so as yet she can not confirm or dismiss it but she she doubted that i had PD
she said i should see a PSYCHIATRIST, , She thinks it could be self induced PD thats its all in my head
i said to her why in the hell would i want to do that , i wouldnt wish it on my worst enemy
she missed out and OR re-worded and changed things i did say but made up things that i didnt say
DO YOU THINK SHE WAS A REAL NEUROLOGIST or some CRACKPOT
After nearly an hour i left there with MANY MANY MANY more questions than answers
OR IS SHE RIGHT THAT IM A HEAD CASE ( TOMMY DO NOT ANSWER THAT QUESTION )
I phoned and spoke to my GP and she was surprised that this WHATCHAMACALLIT
said that im bringing on the symptoms
I DO trust my GP and she is going to wait for her report but she is shocked
this neurologist woman just brushed aside my anger issues saying i should have anger management
and that i am socially dis-functional ( me socially dis-functional )
she made no mention of my problems with stairs and that i dont travel on buses and trains due to my claustrophobia
SO ALL IN ALL A TOTAL WASTE OF A DAY
my doctor isnt happy but she will let me know when she has read her fairy tale report
thats my bitching for this evening
keith 
Am so sorry. It took years to diagnose me: they made me feel awful……………
I was told that I came from a dysfunctional family to which I replied:
“and I suppose yours is f*****g functional…” and walked out. It makes me sooooooooo angry.
Ok you can get a second opinion, the irony of this is that you have to FIGHT when you feel least able.
I really empathise. Whilst being notoriously difficult to diagnose she should never have left you feeling so angry and negative, hardly professional.
BIG HUG
Hi Bruv
Firstly I’m glad you spoke to your GP as she understands you and also suspected PD or some other neurological disorders and it helps ( a little) when a professional agrees with you unfortunately for your GP she will find that consultants seem to be on a higher plain than any GP
Secondly her reply to you that it was shocking was exactly what my GP said to me however he would never dare make that statement to higher entity.
Thirdly do I think your nuts and putting all your symptoms on well I am going to answer ABSOLUTELY UNDOUBTEDLY NOT I believe you your GP believes you , your family believe you and everyone of us believes you.
I know only too well what it does when a consultant infers it’s all in your head .
I’m not going to explain anymore because it’s well documented on the forum and it’s the forum that will help you keep fighting .
You know where I am Bruv and I’ll be here if you need to talk
Tommy
hi lesley
thanks for the hug right now its well needed and welcome
ive calmed down now but earlier was a bit pissed
i would have prefered a definite NO
But being left in limbo and made to feel like i was crazy wasnt easy to accept
but i will get a second opinion
lets hope it isnt another 7 month wait
keith
Am right there with you. I believe you. Anger issues: jeeeeeeeeeeeez they don’t have a clue. We can show 'em anger.
You need to talk, I know you don’t know me, am still here.
Even my brother-in-law ( GP ) said there was nothing wrong with me. He ahs since apologised. Steep learning curve there then.
You have to fight this one.
Never forget you know your own body, They are guessing.
Hi Lesley I do know my body but as far as the neurologist thinks
I don’t know my own head
Basically she called me a head case 
Hi Lesley
Are you sure you want to talk to an angry crazy person lol
Now I’m calm I’ve come to this conclusion
I might be crazy
But at least I don’t talk out my backside like a 
ass
Hi Keith hope it all gets sorted out soon. If only they would do the dat scan.
Thinking of you Keith.
Babs x x x not been on as was out with my friend for something to eat.
i will get there eventually
at least my doctor is on my side
she doesnt care if she has to ruffle a few feathers
im in a good mood now ,
just tucking into some chocolate mousse after our take away to celebrate our 25th
be on tomorrow
keith
Hi Keith really don’t get some of these so called professionals you need to ask your gp to get you to see another neurologist and tell her you want a dat scan ASAP as you need an answer to the cause of your problems keep your spirits up I, m here for you anytime
Pete and mam