My name is Tincy Jose and newly joined to the forum on world parkinsons day. I works in NHS. I am 43 years old and I have been diagnosed with moderate parkinsons disease unfortunately in September 2019 .
I have been perfectly healthy. I haven’t had many symptoms. What I initially felt was whilst walking my right foot step was louder than the left one but which I was noticed whist walking in the hospital corridoors especially in the evening when it’s quieter. Few times I looked at the back of my shoe to see anything stuck or not. I was thinking in mind to go to gp but then l thought that is not a reasonable cause to go. Then I felt while writing my hands jerked few times , that also I thought may be because I am rushing to write whilst at work. But I was on a night shift on 2nd of June 2919. Once I walk ed past my colleague who stopped me and ask ed is anything wrong with my leg. I said I am not sure, she said the same I was thinking and insisted me to go to gp the next day itself. So I did take it on board and made appointment with gp and realised I am dragging my leg a bit as well whilst walking but all the examinations were normal. But she said I needed a neurology review and sent me to ambulatory emergency care as gp referral to neurologist can take months to happen.
In AEC I have been seen acute medicine consultant who thought it could be MS and done all the screening which all came back normal, MRI head was also normal. Then I had to wait for neurology appointment , and I was on sick leave whilst waiting for the appointment as per advice.
Whilst relaxing at home I experienced tremors on my right arm , it’s experienced only at rest. One day I was reading BBC news and I read a news about one of the Chaser Dr.paul sinha (sinnerman) diagnosed with PD. Then i found his blog about his PD. Whilst reading that I doubted myself. But I didn’t forcefully looked for further at that point. But as days were going I was able to realise that I am heading towards this. After 4weeks wait I managed to see the neurologist who wanted to start me on Levodopa straight away which I wasn’t very happy. He sent me for DAT SCAN which confirmed I have PD. I have been told the result whilst I was at work as the result was not ready when I had the consultation. Even though I knew this is the outcome but it was like a bomb on my head. I went to my matron and burst out in tears and the positive words and support she has given me was incredible.
I have been started on Ropinirole 2 mg and then increased gradually and now I am on 6mgs and also on Rasagiline 1 mg .
I am lucky as I work in the hospital. I have a great supportive team of colleagues (But not everyone knows ). I am being positive and keep going. I have taken promotion after the diagnosis. I was a staff nurse, now past 7 months I am working as a junior sister in AMU.
Its hard for my husband to accept but this is life isn’t it ? I have two boys , they are 13 and 9 yrs old , I haven’t told them yet. Elder son is autistic that’s my worry. But determined to go as long as I can. Over thinking isn’t worth, time to remain positive and fight.
Sorry it’s been bit long. But really enjoying being here.
Take care .