I have recently been told by my Neuro that i have the early signs of PD. I will try and give as much details as possible here and would like as many opinions and advice as possible.
The more i look at it i think it started back in 2009, when i was 27. I had tremor, wekness and 'pins and needles' in my left hand/arm. From that i was referred and had muscles/nerve conductive tests carried out. They came to the conclusion i had carpol tunnel syndrome. I had the operation for this, and even though my hand never gained its 'normal' use back, i lived with it.
Since then i get tremors in my hand when i yawn/sneeze?. Anyways back in Oct '13 i noticed my walking had changed, i was struggling to lift my feet, again left hand side. It got that bad I went to my GP, who referred me to Neuro, from that i had my first MRI scan. It came back all clear, so it was put down to stress (I have a business and had separated from my wife).
So i plodded on thinking it would improve, then in June '14 i went back to my GP about another issue, he brought up my walking and said he wasnt happy with the 'stress' diagnose. I was referred again and had
another MRI, Nerve and muscle conductive test, Lumbar punchture and bloods.
ALL came back clear (still awaiting bloods)
Since Dec '14, i have progressively got worse, I now walk with a crutch as i have no balance and minimum movement in legs, i have severe rigidity in my left hand side. In have had several falls resulting in broken ribs, smashed elbows, badly cut face (chin needed glued) etc etc.
Now I am getting severe pain behind my left knee, left elbow, left shoulder across back of neck and into right shoulder. I was at my GP on Wednesday who cant give me anything until he speaks to my Neuro (whos on holiday). My Neuro has told me i will start meds once i have had my DaTscan, but have been waiting 7 weeks and have been told i need to wait another 6.
I am a strong man, but this is physically and mentally taking its toll on me.
I know it is a long read, but your comments are welcome.