My Brother has been on Produodopa Pump since November he is finding the daily changing the medication difficult. I been supporting him since before Christmas and requested support from social Services as I’m also having to assist with washing and dressing.
Social Services saying it’s medical requirement and can not be involved and needs to be District Nurse , his GP refers as back to his Parkinson’s Nurse at Charing Cross.
Any one have any experience where the daily support with pump should be delivered from.
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Hi, @Michael-bryan. Welcome to the forum. It’s really good you’ve found your way here, though I’m sorry it’s under such stressful circumstances.
You’re not alone in this - the Produodopa pump can be very demanding, especially early on. Many people find the daily medication change and pump management difficult without hands-on support.
You might find this page helpful, as it explains more about Produodopa, how it’s managed, and the support people often need.
In terms of who should support - For the pump management itself (medication changes, technical issues), it’s usually classed as a specialist medical task, often led by the Parkinson’s nurse team or hospital service that initiated the pump.
District nurses can sometimes support, but this usually depends on local arrangements and whether they’ve been trained on the pump.
You can also call our free and confidential helpline for advice on 0808 800 0303. Our trained experts and specialist nurses are on hand anytime between 9am and 6pm Monday to Friday, and 10am and 1pm on Saturdays.
You’re doing an incredible job supporting your brother. Hopefully other members with pump experience will also jump in and share what worked for them.
You’re very welcome here - please keep posting and asking questions! 
Parkinson’s UK Moderation Team
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Many thanks for your prompt reply , I now understand where the responsibility lies. We have a local care company who have arranged to be trained by the specialist Parkinson’s nurse so they can take on my brothers support. Just checking we were going in the right direction.
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Reading through everyone’s experiences with the Produodopa pump really highlights how personal the adjustment process can be, especially when it comes to managing dosage, mobility improvements, and side effects over time. It’s reassuring to see people openly sharing practical experiences because that kind of real-world feedback can help others feel more prepared before starting treatment. I also came across another useful discussion covering similar patient experiences here: https://forum.parkinsons.org.uk/t/produodopa/learn more40607. These community conversations are genuinely valuable for patients and caregivers trying to better understand long-term Parkinson’s treatment options.