I had a long conversation with my Nurse Specialist today and it is clear that this problem is widespread and doesn’t just concern Ralnea. Apparently a change of any brand can cause adverse reactions for some patients, and there are regional differences between the generally preferred brands for prescriptions. Ipinnia XL seems to be the favourite in my neck of the woods – Devon.
My NS would welcome some research into this topic, but of course the driving force behind this is the need to find the cheapest source. I spoke to the pharmacist in a regional chain of chemists today to see if he could find a supplier of Ralnea. To cut a long story short if he got Head Office approval to buy it (depending on volume) they would pay something like £5 or less for a 28 tablet pack whereas my independent chemist would have to pay something like £50. That’s not the full story of course, but illustrates the general position.
These problems must be the same for many medicines, not just those for PD.
If my pharmacist is unable to get Ralnea for me I am thinking (as I said in my previous post) about getting my GP to agree to let me try some different brands in order to find those that suit me. The Nurse Specialist tells me that I would notice a difference in about two weeks. Unless of course I’m told that it would pose any problems.
To close, my only comment is that we should individually keep the pressure up, and fight hard for what is best for us.
Best of luck!