Hi vicki
think you were a very brave lady to do this story. Your o/h adores you and the boys. How lucky you are to have his love and support. Not all pwp do ..
When you were in the waiting room to see your consultant. I really understood how you felt. I also feel the same as you, knowing this is how it will be in time.
Vicki well done girl! And keep posting so we know how you are getting on with things. I wish you and your lovely family all the best PB x
blueeyes I totally agree. The education of health care professionals is the way forward.
Tina
Tina
It took great courage to expose yourself in this way Vikki. Although they are less severe than yours, I have my own problems with ICDs and am trying to get off Dopamine Agonists: I know how difficult it is to admit to yourself what the extent of the problems are, let alone expose them for public ecrutiny. However I have to say I am pretty angry at the way this programme depicted Parkinson’s and I have put in a formal complaint to C4 that the programme was misleading, damaging. and sensationalist.
Misleading because side effects occur in around 20% of people taking DAs and only a few are unlucky enough to have ICDs as severe as yours. This was not made clear in the programme, where the statistics quoted at the end dealt only with the incidence of the disease and not the incidence of the side effects. The resulting implication was that [u]all[/u] of us with Parkinson’s suffer from such disorders.
Damaging because by failing to put Vikki in context as an extreme and exceptional case, the programme gave her the status of typicality. In the programme we were presented with some archive medical film of advanced cases and a 40 year old suffering atypical symptoms. (Only one other person with Parkinson’s is shown speaking, the rest are shown only as anonymous trembling hands.)
These are the extreme ends of a spectrum which covers well over one hundred thousand of us living in Britain, and by ignoring that spectrum while concentrating on the extremes, the programme will do serious damage to the ongoing campaigns run by Parkinson’s UK to confront stereotyped views of people with Parkinson’s.
Sensatioalist because instead of even mentioning the success of many PwP’s attempts to live a “normal” life after diagnosis, it joined the present fashion for programmes on extreme medical conditions. In these programmes medical conditions are turned into a form of public spectacle: in this case it was complete with rapid-fire editing, pounding music and sexual innuendo. In spite of some moving scenes of Vicki’s family life, the interest was clearly in a prurient look at her sex life.
Parkinson’s is a medical condition and I deeply resent it being treated as public spectacle.
I am particularly annoyed that the producer was Roger Graef, a veteran in the high quality TV documentary field, who should have exercised some editorial control, especially over the use of statistics.
The negative effect of the programme is shown in the preview in “Time Out”. The reviewer, who has clearly seen an advance copy, ends by calling Parkinson’s a “cruelly dehumanising condition.” I feel that life has treated me cruelly but I am still a human being. It is not the medical condition but the approach of this programme that dehumanises. By all means let TV raise awareness, but not like this.
Misleading because side effects occur in around 20% of people taking DAs and only a few are unlucky enough to have ICDs as severe as yours. This was not made clear in the programme, where the statistics quoted at the end dealt only with the incidence of the disease and not the incidence of the side effects. The resulting implication was that [u]all[/u] of us with Parkinson’s suffer from such disorders.
Damaging because by failing to put Vikki in context as an extreme and exceptional case, the programme gave her the status of typicality. In the programme we were presented with some archive medical film of advanced cases and a 40 year old suffering atypical symptoms. (Only one other person with Parkinson’s is shown speaking, the rest are shown only as anonymous trembling hands.)
These are the extreme ends of a spectrum which covers well over one hundred thousand of us living in Britain, and by ignoring that spectrum while concentrating on the extremes, the programme will do serious damage to the ongoing campaigns run by Parkinson’s UK to confront stereotyped views of people with Parkinson’s.
Sensatioalist because instead of even mentioning the success of many PwP’s attempts to live a “normal” life after diagnosis, it joined the present fashion for programmes on extreme medical conditions. In these programmes medical conditions are turned into a form of public spectacle: in this case it was complete with rapid-fire editing, pounding music and sexual innuendo. In spite of some moving scenes of Vicki’s family life, the interest was clearly in a prurient look at her sex life.
Parkinson’s is a medical condition and I deeply resent it being treated as public spectacle.
I am particularly annoyed that the producer was Roger Graef, a veteran in the high quality TV documentary field, who should have exercised some editorial control, especially over the use of statistics.
The negative effect of the programme is shown in the preview in “Time Out”. The reviewer, who has clearly seen an advance copy, ends by calling Parkinson’s a “cruelly dehumanising condition.” I feel that life has treated me cruelly but I am still a human being. It is not the medical condition but the approach of this programme that dehumanises. By all means let TV raise awareness, but not like this.
Here is a short clip from, Requiem for a Dream.
It portrays a woman hooked on sliming pills followed by her subsequent decent in to addiction and madness. The back drop in the short clip, is that of pill popping along with sensualist editing which is similar to what i observed in Fridays documentary.
I will say it again and again, until i blue in the face; Anyone who thinks they can use the media to raise awareness of OCD in any positive or meaningful way is living in cloud cuckoo land! All the media want is a juicy story at our expense. The only way of raising awareness (across all levels of OCD impact scale), is through education, education and education.
bluey
[This post has been edited/removed by moderators because it does not comply with our terms and conditions. You can find our terms and conditions here: http://www.parkinsons.org.uk/forum_policy.aspx]
It portrays a woman hooked on sliming pills followed by her subsequent decent in to addiction and madness. The back drop in the short clip, is that of pill popping along with sensualist editing which is similar to what i observed in Fridays documentary.
I will say it again and again, until i blue in the face; Anyone who thinks they can use the media to raise awareness of OCD in any positive or meaningful way is living in cloud cuckoo land! All the media want is a juicy story at our expense. The only way of raising awareness (across all levels of OCD impact scale), is through education, education and education.
bluey
[This post has been edited/removed by moderators because it does not comply with our terms and conditions. You can find our terms and conditions here: http://www.parkinsons.org.uk/forum_policy.aspx]
If anyone has suffered at the hands of OCD side effects and not watched Requiem for a Dream, i suggest you watch it! It opened my eyes in highlighting that prescription as well as illegal drugs can high jack the brain. The movie was nominated for an Oscar, so well worth a watch.
attached is the trailer.... [This post has been edited/removed by moderators because it does not comply with our terms and conditions. You can find our terms and conditions here: http://www.parkinsons.org.uk/forum_policy.aspx]
attached is the trailer.... [This post has been edited/removed by moderators because it does not comply with our terms and conditions. You can find our terms and conditions here: http://www.parkinsons.org.uk/forum_policy.aspx]
I just watched it. I was touched, I still am, then again I always have been.
It was brilliant. I was left feeling a bit down, but when you dwell on it long enough, parkies tends to have that effect.
I was quite miffed to find that anybody could have anything to whinge about, but I should no better. I'm not going to ruin this thread by commenting on them any further.
I would say that you missed an opportunity to highlight the waste of milk due to supermarket pricing policy. E.g. 2 x 2 litre bottles of milk cost £1.49 each or you can buy 3 x 2 litre bottled for £3. I, and many others like me, who only want 2 bottles are forced to buy 3 thereby consigning one to the sea. There is global warming issues (keeping more cows = increases methane gas emissions), recycling cost of packaging, carbon footprint of those 2 litres between farm and supermarket and supermarket and my house), not to mention the cost to me in petrol and refrigeration. And it's 2p more expensive.
I'm just saying is all. Otherwise brilliant. I couldn't have done it. I have a face for radio.
A huge personal thanks for educating and highlighting our plight to the general public.
It was brilliant. I was left feeling a bit down, but when you dwell on it long enough, parkies tends to have that effect.
I was quite miffed to find that anybody could have anything to whinge about, but I should no better. I'm not going to ruin this thread by commenting on them any further.
I would say that you missed an opportunity to highlight the waste of milk due to supermarket pricing policy. E.g. 2 x 2 litre bottles of milk cost £1.49 each or you can buy 3 x 2 litre bottled for £3. I, and many others like me, who only want 2 bottles are forced to buy 3 thereby consigning one to the sea. There is global warming issues (keeping more cows = increases methane gas emissions), recycling cost of packaging, carbon footprint of those 2 litres between farm and supermarket and supermarket and my house), not to mention the cost to me in petrol and refrigeration. And it's 2p more expensive.
I'm just saying is all. Otherwise brilliant. I couldn't have done it. I have a face for radio.
A huge personal thanks for educating and highlighting our plight to the general public.
I've put out some feelers to First Cut and C4 about a follow-up called "I've got Parkinson's and I feel fine".
Not a sniff of interest.
Just as well cos I don't know anyone who fits this category.
Not a sniff of interest.
Just as well cos I don't know anyone who fits this category.
eck i think i love you!
for the millionth bloody time - its MY story - no one elses - and i say in the doc these side effects dont affect everone! jaysus!!!!
get a grip - formal complaint!!! try to stop moaning and get off yr butt and do something better
got a hangover - feel grumpy - as i was binge drinking and then lap dancing all night - joke!
im 40 for fecks sake- doubt i wud have much in common socially with some folk - i also work hard,study hard and fight hard!
for the millionth bloody time - its MY story - no one elses - and i say in the doc these side effects dont affect everone! jaysus!!!!
get a grip - formal complaint!!! try to stop moaning and get off yr butt and do something better
got a hangover - feel grumpy - as i was binge drinking and then lap dancing all night - joke!
im 40 for fecks sake- doubt i wud have much in common socially with some folk - i also work hard,study hard and fight hard!
just read ur blog iliked it ,intrestin
Dear Vickie,
I watched the channel 4 programme and from past experience know that programmes are not always well edited, saying that it was as you rightly say your story.
I felt it needed to be followed by a discussion as it raised many unanswered questions.
My husband has had parkinsons for 29year's and was diagnosed at the age of 39yrs although he had symptoms for several years before and would not go to the doctors.
He is now almost 68yrs so you can imagine we have all been through many different medications and problems. He is now on a lot of medication including requip and he has problems on 6mg per day but another man I know has 24mg with no problems. My husband has also had a brain operation when he was about 52yrs which stopped his involuntary movements. I won't bore you with all the details of our life, just to say I wish you well, life is a struggle but you can enjoy a good family life by working through the many stages together, which is sometimes very difficult. I would say also we have been lucky in our later years to have a consultant who believes in both partners attending clinic together and this works very well. My husband always says if you don't use it you will lose it so keep the brain matter going. best wishes vivian
I watched the channel 4 programme and from past experience know that programmes are not always well edited, saying that it was as you rightly say your story.
I felt it needed to be followed by a discussion as it raised many unanswered questions.
My husband has had parkinsons for 29year's and was diagnosed at the age of 39yrs although he had symptoms for several years before and would not go to the doctors.
He is now almost 68yrs so you can imagine we have all been through many different medications and problems. He is now on a lot of medication including requip and he has problems on 6mg per day but another man I know has 24mg with no problems. My husband has also had a brain operation when he was about 52yrs which stopped his involuntary movements. I won't bore you with all the details of our life, just to say I wish you well, life is a struggle but you can enjoy a good family life by working through the many stages together, which is sometimes very difficult. I would say also we have been lucky in our later years to have a consultant who believes in both partners attending clinic together and this works very well. My husband always says if you don't use it you will lose it so keep the brain matter going. best wishes vivian
Sex, Lies and realism ....
Vicki's story is simply that, about her. It was clear in the programming .... 'one woman's struggle....' I don't see anywhere it saying 'this is typical of PWP'. If it prompts people to ask me 'are you like that' then I can answer for me and my life and I will. That however is the point, those who wish to be educated will ask and therefore more awareness has been achieved. And there will be many who may think that Vicki's life is typical.... I guess, well that will give them something to think about for sure.
Either way it makes change. Change drives improvement. Change .... hang on it says it above in big blue letters.... CHANGE ATTITUDES.....
Frankly from all I have seen in postings forums and websites, it seems that the first wave of change is actually within our own group, us patients. It is causing us to debate, think, comment, it is causing some to be rude, which actually I find totally unacceptable, a lack of basic manners for goodness sake shows the PD Community in a far worse light than any documentary.
Its not difficult to say 'Vicki I didn't appreciate some of the comments you made, and can we talk about it' ....
I would hope that Parkinson's UK would support Vicki by offering some 'communications and media' training after all she is a member. That would have helped sort the This Morning team out, who were also rude. If Vicki is going to continue waving HER flag for PD then perhaps this would be a good idea.....
Kindest Colleen H-H
Oh and P.S. Vicki how much money have you raised for PD..... I suspect £1000's .... have there been 50+ posts about that? if not there ought to have been.....
Vicki's story is simply that, about her. It was clear in the programming .... 'one woman's struggle....' I don't see anywhere it saying 'this is typical of PWP'. If it prompts people to ask me 'are you like that' then I can answer for me and my life and I will. That however is the point, those who wish to be educated will ask and therefore more awareness has been achieved. And there will be many who may think that Vicki's life is typical.... I guess, well that will give them something to think about for sure.
Either way it makes change. Change drives improvement. Change .... hang on it says it above in big blue letters.... CHANGE ATTITUDES.....
Frankly from all I have seen in postings forums and websites, it seems that the first wave of change is actually within our own group, us patients. It is causing us to debate, think, comment, it is causing some to be rude, which actually I find totally unacceptable, a lack of basic manners for goodness sake shows the PD Community in a far worse light than any documentary.
Its not difficult to say 'Vicki I didn't appreciate some of the comments you made, and can we talk about it' ....
I would hope that Parkinson's UK would support Vicki by offering some 'communications and media' training after all she is a member. That would have helped sort the This Morning team out, who were also rude. If Vicki is going to continue waving HER flag for PD then perhaps this would be a good idea.....
Kindest Colleen H-H
Oh and P.S. Vicki how much money have you raised for PD..... I suspect £1000's .... have there been 50+ posts about that? if not there ought to have been.....
As one of the instigators of the documentary (I wrote the initial presentation and helped raise the money to make a trailer to interest the TV professionals.) I feel I must explain what we were about.
The remit was to RAISE AWARENESS TO YOUNG ONSET PARKINSON’S. it was never intended to be about Parkinson’s per se but rather the plight of the young amongst us. Vicki made the point at the very beginning that most saw it as an old people’s disease.
We live in a world where if we had presented a programme detailing the "pathological history" of PD we would have had few viewers instead of the many we did have. It is natural that we, who live with PD, are deeply interested in the subject, but I doubt the general public would be. However, Vicki’s story grabbed them.
Compressing many hours of filming from one year's shoot, into 24 mins ensures that the whole story cannot be told.A
I am sorry if people were offended. I have to say that I am proud of Vicki for her courage and honesty and of Oliver Cheetham who treated a difficult subject with sensitivity and compassion.
Annie.
The remit was to RAISE AWARENESS TO YOUNG ONSET PARKINSON’S. it was never intended to be about Parkinson’s per se but rather the plight of the young amongst us. Vicki made the point at the very beginning that most saw it as an old people’s disease.
We live in a world where if we had presented a programme detailing the "pathological history" of PD we would have had few viewers instead of the many we did have. It is natural that we, who live with PD, are deeply interested in the subject, but I doubt the general public would be. However, Vicki’s story grabbed them.
Compressing many hours of filming from one year's shoot, into 24 mins ensures that the whole story cannot be told.A
I am sorry if people were offended. I have to say that I am proud of Vicki for her courage and honesty and of Oliver Cheetham who treated a difficult subject with sensitivity and compassion.
Annie.
I would like to say well done to Vicki for her programme on how Parkinson’s affects her and her family. Not many people (with or without Parkinson’s) would like to have their personal life filmed and broadcasted on television. I also thought that both Eammon and Ruth on This Morning were rude and insensitive and made Vicki feel uncomfortable. As both are seasoned presenters it should be their job to make guests feel comfortable and not to try and embarrass them. Also Eammon thinking that Michael J Fox had MS was just to ridiculous to even comment on. Don’t they do any preparation beforehand? Perhaps it is time for a change of presenters – This Morning bosses are you listening?
The proof of the pudding is in the eating.....
The Sunday people run a 2 page story on the programme, featuring picture of a topless Barbara Windsor and making a bit of "carry on" regarding the story!
The Mail-on-line also ran the story, and from what i can see the comments from non Parkinson's people are in the main negative. The only positive ones were from PwP defending the programme and Vicki
Overall most of the positive comments that i have read, come from people with Parkinsdon's disease. The vast majority of comments from the general public have been negative or sarcastic!
You say the objectives of the programme, was to both raise awareness of young onset parkinson's and improve understanding of the OCD side effects. Well in my opinion the programme did raise awareness of young onset PD, well done! However it failed to make any ground when it comes to improving understanding among the public of medication and OCD. In fact if anything its made matters worse, in terms of even more negative public opinion regarding OCD side effects!
regards
bluey
The Sunday people run a 2 page story on the programme, featuring picture of a topless Barbara Windsor and making a bit of "carry on" regarding the story!
The Mail-on-line also ran the story, and from what i can see the comments from non Parkinson's people are in the main negative. The only positive ones were from PwP defending the programme and Vicki
Overall most of the positive comments that i have read, come from people with Parkinsdon's disease. The vast majority of comments from the general public have been negative or sarcastic!
You say the objectives of the programme, was to both raise awareness of young onset parkinson's and improve understanding of the OCD side effects. Well in my opinion the programme did raise awareness of young onset PD, well done! However it failed to make any ground when it comes to improving understanding among the public of medication and OCD. In fact if anything its made matters worse, in terms of even more negative public opinion regarding OCD side effects!
regards
bluey
Can I say the media totally sensationalised the stories- they were not my words - think about it!!!!
They caused me immense stress, grief and upset
Actually would love u to read my facebook wall - the majority from non parkies all amazing mainly from strangers
Blue eyes - why r you intent on upsetting me?
Can I ask what have u personally done ? I find ur attitude uncallled for - we re in this together for gods sake
They caused me immense stress, grief and upset
Actually would love u to read my facebook wall - the majority from non parkies all amazing mainly from strangers
Blue eyes - why r you intent on upsetting me?
Can I ask what have u personally done ? I find ur attitude uncallled for - we re in this together for gods sake
We are all entitled to our opinions and individually have had different experience of the dreaded PD, as a pwp or a loved one, we also have had different experiences with affects/effects of PD and DA's, in a 24 minute doc how an earth do you get all that in 'goodness knows'.
Myself for one and I speak for my o/h cDA'sould not have done this so vicki good on you girl.
The emotive and sometimes embarrassment of dealing with effects of icd/ocd from taking DA's is devastating and the programme did not make it clear that for some DA's are a lifeline. but what it has done is open a discussion albeit negative at times.
From experience you will always get people who cant get their heads around behaviours caused by PD or meds and will judge or form their own opinion but let them get on with it IMHO, not saying it is easy, but at least now the health professionals are taking notice more.
Bluey : did you mean the Sunday People today ?
Vicki: xxx
Bubble
Myself for one and I speak for my o/h cDA'sould not have done this so vicki good on you girl.
The emotive and sometimes embarrassment of dealing with effects of icd/ocd from taking DA's is devastating and the programme did not make it clear that for some DA's are a lifeline. but what it has done is open a discussion albeit negative at times.
From experience you will always get people who cant get their heads around behaviours caused by PD or meds and will judge or form their own opinion but let them get on with it IMHO, not saying it is easy, but at least now the health professionals are taking notice more.
Bluey : did you mean the Sunday People today ?
Vicki: xxx
Bubble
I,m sorry I missed the program but read about it in magazine. When I first read it I felt it was quite brutal, but then that is what Vickie felt about her illness and she is also quite young and maybe it,s seems harder for her being a nurse. I have tried to get my family into thinking about how to look for signs and symptoms and see how it is affecting me, but all I get is that I am looking into things in depths and should not try to find out more about the disease, they think I,m dwelling on it which I am not as I couldn't cope if I did. People do not recognise how Parkinsons affects your life and your family around you. It,s not life threatining and its just the shakes oh how I wish. We cannot educate people who do not want to know no matter how hard you try. So maybe we shouldn,t be so hard on Vicki as she is a victim like ourselves.
Annie, I take your point about wanting to grab people’s attention, and I am sure that everyone involved had the best of intentions and motives, but I still feel that the approach ended up unbalancing the programme. The Time Out reviewer that I quote is presumably not your average viewer, but he ends up with a ghastly view of life with Parkinson’s - an indication of how the sensationalising approach demanded by TV shapes attitudes. His use of the word “dehumanising” was what eventually decided me to complain to C4. I will be raising this issue with the magazine. (Vikki, moaning publicly is one of my ways of getting off my butt and doing something.)
I had also complained to the BBC about the way BBCTV had ignored Parkinson’s Awareness Week this year .I know from that experience and from friends in the media that you have to make a formal written complaint to get any kind of reaction from people who have the power to do anything about the lack of coverage of Parkinson’s in anything other than this kind of sensational manner, which is demanded by our present TV executive mindset.
We end up needing to raise public awareness of Parkinson’s because the media generally fall back on stereotypes and extreme cases. Parkinson’s UK is trying, in an excellent campaign, to show that the condition is something that tens of thousands of us are living with. How much damage to that campaign has the stereotyping in this programme done? (I am not accusing anyone of deliberate damage - it's just the way in which modern TV works.)
There is an obligation on C4 and the producers under OFCOM rules to respond to my points, and I hope having to explain themselves will nudge them a bit in the right direction - not much probably, but very little bit helps. I should get replies in a few weeks and will post them on the forum.
Incidentally the BBC have been sitting for nearly a year on a feature-length film covering five years in the life of musician Barbara Thompson, who was diagnosed fifteen years ago. They have it scheduled for transmission in early November on BBC4, which has a 2% share of the viewing public.
I had also complained to the BBC about the way BBCTV had ignored Parkinson’s Awareness Week this year .I know from that experience and from friends in the media that you have to make a formal written complaint to get any kind of reaction from people who have the power to do anything about the lack of coverage of Parkinson’s in anything other than this kind of sensational manner, which is demanded by our present TV executive mindset.
We end up needing to raise public awareness of Parkinson’s because the media generally fall back on stereotypes and extreme cases. Parkinson’s UK is trying, in an excellent campaign, to show that the condition is something that tens of thousands of us are living with. How much damage to that campaign has the stereotyping in this programme done? (I am not accusing anyone of deliberate damage - it's just the way in which modern TV works.)
There is an obligation on C4 and the producers under OFCOM rules to respond to my points, and I hope having to explain themselves will nudge them a bit in the right direction - not much probably, but very little bit helps. I should get replies in a few weeks and will post them on the forum.
Incidentally the BBC have been sitting for nearly a year on a feature-length film covering five years in the life of musician Barbara Thompson, who was diagnosed fifteen years ago. They have it scheduled for transmission in early November on BBC4, which has a 2% share of the viewing public.
I kno I'm being over sensitive - another shitty parkie symptom of mine along with paranoia! Been for a pint- chilling out! So realise I can't take this personally - of course no one will love it like me and ollie- but it's saved me- I was spiralling out of control- its been able o view me from the outside, believe me! Xmas time I lost it and took 10 weeks off work- hit very dark times which is not me- for not just parkie reasons- I was struggling mentally with my fate and hit the bottom.
As well as me, My sister has a brain tumour and my 5 yr old great niece has a terminal illness- hit with unlucky stick for sure ! Then my beloved dog was put down in nov - he had brain tumour too! And ken n I very nearly split for reasons I'm not going into but lots of heartache!!!
Also work- (I'm paediatric respiratory nurse specialist covering 3 hospitals- )doesn't "get" pd - I was promoted two yrs ago and I love my job and made a difference in north Durham for sure - ( admission rates gone down) / but I drive approx 150 miles every day / out of house for approx 13 hrs: yes I'm proud of that but my beautiful boys have suffered as result
I'm in limbo / no mans land / not sure where my future lies.....
Wen Sunday people article came out - well let's just say the nasty stuff hit the fan - can't go into detail at present, suffice to say the NMC were involved/ I'm not in trouble but on leave at present- I feel I'm fighting to survive on every level
I feel I've given sooo much of me to help people realise wot it's like to have this at my age - for what I believed wud be a doc largely un noticed! So naive was that!!!
But the amount of pwp or family ,embers who have contacted me directly to thank me has made it worthwhile.
As I said on "this morning" my philosophy is treat there as u wish to be treated/ remains my mantra x
God bless and let's hope the day comes wen I can say " I used to be vic the parkie chick xxx
I'm astounded by the media interest and debate it's caused - but I'm a positive lass/ if it's got people talking then great!
As well as me, My sister has a brain tumour and my 5 yr old great niece has a terminal illness- hit with unlucky stick for sure ! Then my beloved dog was put down in nov - he had brain tumour too! And ken n I very nearly split for reasons I'm not going into but lots of heartache!!!
Also work- (I'm paediatric respiratory nurse specialist covering 3 hospitals- )doesn't "get" pd - I was promoted two yrs ago and I love my job and made a difference in north Durham for sure - ( admission rates gone down) / but I drive approx 150 miles every day / out of house for approx 13 hrs: yes I'm proud of that but my beautiful boys have suffered as result
I'm in limbo / no mans land / not sure where my future lies.....
Wen Sunday people article came out - well let's just say the nasty stuff hit the fan - can't go into detail at present, suffice to say the NMC were involved/ I'm not in trouble but on leave at present- I feel I'm fighting to survive on every level
I feel I've given sooo much of me to help people realise wot it's like to have this at my age - for what I believed wud be a doc largely un noticed! So naive was that!!!
But the amount of pwp or family ,embers who have contacted me directly to thank me has made it worthwhile.
As I said on "this morning" my philosophy is treat there as u wish to be treated/ remains my mantra x
God bless and let's hope the day comes wen I can say " I used to be vic the parkie chick xxx
I'm astounded by the media interest and debate it's caused - but I'm a positive lass/ if it's got people talking then great!
Dear Vicki,I have not read all the posts here so apologies if I am repeating points already made
I shall not comment on the portrayal of the condition known as PD in the doc. I thought it was supposed to be and fully expected it to be a portrayal of one young person's life with PD. And so it was This is TV and the title (to me) does give a hint that this is unlikely to be a medical doc.
I did not like the editing
I think that a young woman with a young family who has PD, has battled with it's treatment and who holds down a responsible job is only to be admired.
Vicki, I have never been a particularly sociable person,or enjoyed getting dressed up . But oh how how often I wished I had been. It looked such fun
When it comes to PD, I shall continue to value the opinions and advise of my family, my friends and other pwp . Also my doctors (although I wish they knew more about it). i.e those who have an interest in it. I can always discard the opinions of those who don't know & have no interest in me or in PD .
Keep smiling Vicki.
I shall not comment on the portrayal of the condition known as PD in the doc. I thought it was supposed to be and fully expected it to be a portrayal of one young person's life with PD. And so it was This is TV and the title (to me) does give a hint that this is unlikely to be a medical doc.
I did not like the editing
I think that a young woman with a young family who has PD, has battled with it's treatment and who holds down a responsible job is only to be admired.
Vicki, I have never been a particularly sociable person,or enjoyed getting dressed up . But oh how how often I wished I had been. It looked such fun
When it comes to PD, I shall continue to value the opinions and advise of my family, my friends and other pwp . Also my doctors (although I wish they knew more about it). i.e those who have an interest in it. I can always discard the opinions of those who don't know & have no interest in me or in PD .
Keep smiling Vicki.